Scleroderma and the Ordinary Girl — Kim Tocker

The other weekend, Max and I went away and I made a brave step regarding my struggle to stay active (or not) while living with scleroderma. There are…

As Christmas approaches, I always become rather nostalgic. It marks the end of another year, and despite trying not to, I tend to look back to the same time last…

Systemic scleroderma is a rare disease. According to the Cleveland Clinic, its annual incidence is only about 20 cases per 1 million adults in the United States. …

While scrolling through my Facebook page the other day, I came across someone’s post that read, “If you had to wear a warning label, what would yours read?”…

There is a certain type of person I have encountered on my scleroderma journey. These individuals just cannot control their compulsion to share ideas about why I…

With the passing of Halloween last week and my mind turning to all things nightmarish, I have noticed that living  with systemic scleroderma could be referred to as a…

I’ve always been a highly sensitive person, even prior to getting scleroderma. So, I’m not a big movie fan, as I get distressed at the violent, misogynist, and twisted thinking…

Scleroderma is often a progressive disease, unless someone is fortunate enough to go into remission. For me, remission is but a distant dream. I have even experienced a progression…

There is a very good case to be made for aiming for the stars. I am all for people setting amazing goals and then managing to achieve them. I…

Every morning I am woken early by my husband, Max, brandishing a cup of tea and some toast. My body is always stiff, sore and swollen. I am unable…

Living with scleroderma means constant cycles of specialist consultations, and I like to keep a diary to document each visit. While updating my dairy, I started to think about…

Stiff, bent, inflamed-jointed fingers do not do the best job of getting my shoes on, even though I have no open wounds from calcinosis or ulcers at…