Columns

Should I Go to the Emergency Room or Wait It Out?

The pounding of my heart echoes clearly in my ears. I can see the thumps through the skin on my chest. It’s erratic, beating slowly and calmly one minute, and out of control the next. It’s like a toddler is in my chest playing a new set of drums —…

My Husband Lives With Scleroderma, Too

People often ask me how I continue to battle scleroderma. My answer mirrors that of many others fighting awful diseases: I have no other choice. I may not have chosen to live with scleroderma, but my husband, Ross, does every single day. In the beginning, we fell in love hard…

Let’s Get Ready to Rumble in the Fight Against Scleroderma

The bell echoes loudly, signaling the fight’s start. The energy and stakes are high. Gloves on, two boxers face off with intense determination. Only one will be crowned champion. Living with scleroderma is uncomfortably similar to being a heavyweight boxer. Every day is spent tirelessly preparing for the next…

The Other 20%: Scleroderma in Males

They’re the elusive red diamonds in a sea of white. Rare upon rare, males with scleroderma make up 20% of scleroderma individuals. Their disease can also manifest uniquely among the community: Males frequently have more muscular and pulmonary involvement — significant pulmonary fibrosis and impaired lung function…

‘Excuse Me, What Did You Say?’

The clock ticked loudly as the phones rang in unison with a ticking timepiece that was getting on my nerves. I wondered how long my appointment would take. Sitting in the doctor’s office had become second nature to me. Yet, I was ready to be done with…