Living The Dream - Nicola Whitehill

2018 is looking to be a very busy and exciting year for scleroderma patients. Before I discuss some of the many events scheduled for the year: Thank you to those…

Invisible Disabilities Week, Oct. 15-21, started Sunday, combining with the ongoing October Raynaud’s Awareness Month campaign. It made this a very busy week for our global patient community with…

Sunday, Oct. 1, was the start of #RaynaudsAwarenessMonth 2017. As scleroderma patients, we know all too well how debilitating and painful the symptoms of Raynaud’s can be. In addition, the symptom control…

Here in the United Kingdom, summer is gradually transforming into autumn. The decrease in temperature can be seen by the change of color in the leaves, as well as a change in…

“You should get out more.” These words of advice were recently given to me by a friend, a non-scleroderma patient. I am sure this friend  meant well. But…

In a few weeks, it will be my 20th anniversary of first hearing those life-changing words: “You have scleroderma,” followed by, “and Raynaud’s phenomenon. There is no cure. Your disease is so aggressive…

Those life-changing words “you have scleroderma” followed by “and Raynaud’s phenomenon” often are met with relief, paradoxically, due to finally having an explanation as to what is happening to your body.

Those three words — “You have scleroderma” — followed by — “and Raynaud’s” — have without doubt life-changing, if not life-threatening, consequences. In this column, I discuss the day-to-day impact these…

Last month was Scleroderma Awareness Month, with June 29 being World Scleroderma Day. And, WOW, what a busy month it was for raising awareness of our multi-complex,…

World Scleroderma Day, June 29, 2017 Wehoo, Thursday, June 29, is World Scleroderma Day. This is our opportunity to showcase the rare disease scleroderma to the world to raise…

The month of June is Scleroderma Awareness Month, with June 29 being World Scleroderma Day. To further the theme of Rare Disease Day 2017 — “Research, where possibilities are limitless” — the focus of…

  To further the theme of Rare Disease Day 2017 being “Research, where possibilities are limitless,” I made the focus of my Scleroderma Awareness month campaign, “Research,” while also focusing on…