Columns

Flashback: Scleroderma Awareness Month 2017

Last month was Scleroderma Awareness Month, with June 29 being World Scleroderma Day. And, WOW, what a busy month it was for raising awareness of our multi-complex, rare disease! In this column, I discuss the importance of raising awareness, along with the results…

What Makes Scleroderma Patients Such Strong People?

Naturally, I am in contact with many people who have scleroderma, because I also have systemic scleroderma. I connect with other patients either through social media networks online or in person. Some scleroderma patients are high-profile people, many of whom we know well because we see…

World Scleroderma Day 2017: Let’s Raise Awareness

World Scleroderma Day, June 29, 2017 Wehoo, Thursday, June 29, is World Scleroderma Day. This is our opportunity to showcase the rare disease scleroderma to the world to raise awareness — whether it be for fundraising purposes, for investment in research for that oh-so-desired cause and…

What It Feels Like to Look Rare

According to the Census Bureau, about 30 million people in the United States walk with a cane, crutch, or wheelchair. What do you do when you see someone with a visible problem? Your eyes are immediately drawn to the source, to whatever’s disturbing the “normal” flow of…