Wyatt Wright a.k.a (Wyatt The Warrior) is a 9 year-old young man who was diagnosed with Localized Scleroderma (linear) at the age of 8. Wyatt takes 6 ½ tablets a day and a weekly chemo injection. He is also getting ready to have his second knee surgery…
Columns
Spotlight on the Ssc patient: Maria Alice Martins Correia; Geneva, Switzerland For my blog this week, I would like to introduce Alice to you. Alice is without doubt, one of the bravest pioneering patients of the global Ssc community, and whose story personalises…
The 4th Systemic Sclerosis World Congress was held Feb. 18-20 in Lisbon, Portugal, and organized by the World Scleroderma Foundation, which describes itself as “a nonprofit, non-governmental foundation based in Switzerland, which functions as a research organization in favor of patients suffering from scleroderma.” The Foundation’s Mission Statement:…
On Wednesday 2nd March 2016, I had the honour of attending the Rare Disease UK reception for rare diseases at the House of Commons hosted by Liz Kendall MP. This is the fourth time that Liz has hosted the annual reception for recognising rare disease day, which…
I am very excited to make Rare Disease Day 2016Â the focus of my first post for Scleroderma News. What is Rare Disease Day? From Eurordis.org: “Held each year on the last day of February, Rare Disease Day is an annual awareness-raising event coordinated…
Recent Posts
- New scleroderma survey seeks patient input to guide future research
- Scleroderma added to NIH project targeting autoimmune diseases
- Off-the-shelf cell therapy shows early promise as scleroderma treatment
- Trial to test scleroderma treatments at earliest stages of disease
- Off-label JAK inhibitors may stabilize lung function in systemic sclerosis
- Distinct symptom pattern found for triple-negative scleroderma patients
- Plant-based nanoparticle therapy eases skin thickening in SSc: Study
- Specialized MRI scans may catch early lung damage in scleroderma
- Spotlighting ‘Beacons of Hope’ for this year’s Scleroderma Awareness Month
- Fewer capillaries in hands may contribute to scleroderma bone loss