Living The Dream

August is Gastroparesis Awareness Month. Gastroparesis occurs when the stomach can’t pass food down to the small intestine, thereby affecting the digestion process. Gastroparesis is an unwelcome and debilitating symptom to most scleroderma patients, myself included. Symptoms include bloating, acid reflux, constipation, diarrhea, vomiting, feeling full after…

At the start of this year, I delightedly joined the National Institute for Health Research (NIHR) as a patient research ambassador (PRA) for the dermatology and musculoskeletal departments at The Royal Free Hospital, London. (Courtesy of Nicola Whitehill) According to their…

On July 5, 2018, over here in the United Kingdom, the National Health Service (NHS) celebrated its 70th year since its set-up by then-Health Secretary Aneurin “Nye” Bevan. According to the NHS70 website, “For the first time, hospitals, doctors, nurses, pharmacists, opticians, and dentists were brought together under…

We are now over halfway into our awareness month, culminating with World Scleroderma Day on June 29. As a long-term survivor of our rare disease, it has been very exciting for me to see the vibrant 2018 Scleroderma Awareness Month activity, which is taking place…

We are nearly a week into June, our annual awareness month, which presents a spotlight opportunity for raising awareness about our rare disease and our day-to-day reality of living with scleroderma. The theme for this year’s Rare Disease Day — like last year’s — is research, so…

June 1 marks the start of Scleroderma Awareness Month, with World Scleroderma Day falling on June 29. This is our opportunity to raise awareness of this rare disease in all of its guises. We can spend the month fundraising for research or raising…

Living with a systemic, chronic, degenerative disease without a known cause or cure makes for a diary filled with medical appointments. Symptom management alone is a full-time job. I have a strict daily routine in place to minimize the severity of my ongoing symptoms. However, as every…

In a few weeks, the British Society for Rheumatology (BSR) will hold its annual conference. This year, Liverpool is the host city, which is not too far from me in Southport. Sadly, the practicalities of me actually being able to attend, even though the…

Spring has reluctantly arrived over here in the United Kingdom. An increase in the temperature is most welcome, even if it is only marginal due to my location. To make it out of winter without a body crisis by way of flare-ups or the like is, quite frankly,…

In an autoimmune disease, the body’s natural defense system, the immune system, malfunctions or “trips out,” resulting in the body attacking itself. The American Autoimmune Related Diseases Association lists over 100 different currently identified autoimmune diseases. With the rare…