Here in the United Kingdom, summer is gradually transforming into autumn. The decrease in temperature can be seen by the change of color in the leaves, as well as ... Read more
“You should get out more.” These words of advice were recently given to me by a friend, a non-scleroderma patient. I am sure this friend meant well. But on ... Read more
In a few weeks, it will be my 20th anniversary of first hearing those life-changing words: “You have scleroderma,” followed by, “and Raynaud’s phenomenon. There is no cure. Your disease ... Read more
Those life-changing words “you have scleroderma” followed by “and Raynaud’s phenomenon” often are met with relief, paradoxically, due to finally having an explanation as to what is happening to ... Read more
Those three words — “You have scleroderma” — followed by — “and Raynaud’s” — have without doubt life-changing, if not life-threatening, consequences. In this column, I discuss the day-to-day ... Read more
Last month was Scleroderma Awareness Month, with June 29 being World Scleroderma Day. And, WOW, what a busy month it was for raising awareness of our multi-complex, rare disease! ... Read more
World Scleroderma Day, June 29, 2017 Wehoo, Thursday, June 29, is World Scleroderma Day. This is our opportunity to showcase the rare disease scleroderma to the world to raise ... Read more
The month of June is Scleroderma Awareness Month, with June 29 being World Scleroderma Day. To further the theme of Rare Disease Day 2017 — “Research, where possibilities are limitless” — ... Read more
To further the theme of Rare Disease Day 2017 being “Research, where possibilities are limitless,” I made the focus of my Scleroderma Awareness month campaign, “Research,” while also ... Read more
Scleroderma Awareness Month runs through the month of June, with June 29 designated as World Scleroderma Day. On June 1, I launched my Scleroderma Awareness Month 2017 “Patient Profiles” ... Read more
