Living The Dream

August 15, 2018August 14, 2018

Bringing Awareness to Gastroparesis This Month

August is Gastroparesis Awareness Month. Gastroparesis occurs when the stomach can’t pass food down to the small intestine, thereby affecting the digestion process. Gastroparesis is an unwelcome and debilitating symptom ... Read more

August 1, 2018July 30, 2018

Get Involved in Medical Research: Take Part, Raise Awareness

Columns, Living The Dream

At the start of this year, I delightedly joined the National Institute for Health Research (NIHR) as a patient research ambassador (PRA) for the dermatology and musculoskeletal departments at ... Read more

July 18, 2018July 16, 2018

Happy 70th Birthday to the NHS: Thank You for Keeping Me Alive

Columns, Living The Dream

On July 5, 2018, over here in the United Kingdom, the National Health Service (NHS) celebrated its 70th year since its set-up by then-Health Secretary Aneurin “Nye” Bevan. According to ... Read more

June 20, 2018June 18, 2018

Scleroderma Awareness Raising 2018: Medical Research Investment

Columns, Living The Dream

We are now over halfway into our awareness month, culminating with World Scleroderma Day on June 29. As a long-term survivor of our rare disease, it has been very ... Read more

June 6, 2018June 4, 2018

Scleroderma Awareness Month 2018: Unmet Clinical Needs

Columns, Living The Dream

We are nearly a week into June, our annual awareness month, which presents a spotlight opportunity for raising awareness about our rare disease and our day-to-day reality of living ... Read more

May 23, 2018May 22, 2018

Scleroderma Awareness Month: Shining a Spotlight on Our Disease This June

Columns, Living The Dream

June 1 marks the start of Scleroderma Awareness Month, with World Scleroderma Day falling on June 29. This is our opportunity to raise awareness of this rare disease in ... Read more

May 9, 2018May 8, 2018

New Challenges, New Activities

Columns, Living The Dream

Living with a systemic, chronic, degenerative disease without a known cause or cure makes for a diary filled with medical appointments. Symptom management alone is a full-time job. I have ... Read more

April 25, 2018April 24, 2018

Traveling with an Invisible Disability: My 2015 BSR Presentation Experience

Columns, Living The Dream

In a few weeks, the British Society for Rheumatology (BSR) will hold its annual conference. This year, Liverpool is the host city, which is not too far from me ... Read more

April 11, 2018April 10, 2018

Medical Research and Raising Awareness

Columns, Living The Dream

Spring has reluctantly arrived over here in the United Kingdom. An increase in the temperature is most welcome, even if it is only marginal due to my location. To ... Read more

March 28, 2018March 27, 2018

Scleroderma: March Is Autoimmune Disease Awareness Month

Columns, Living The Dream

In an autoimmune disease, the body’s natural defense system, the immune system, malfunctions or “trips out,” resulting in the body attacking itself. The American Autoimmune Related Diseases Association lists over ... Read more

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