Living The Dream

December 5, 2018December 4, 2018

‘Celebrating’ 20 Years of Being a Patient at the Scleroderma Unit

This week, I am celebrating my 20th year since first dragging my “tin-man” body to the Scleroderma Unit at the Royal Free Hospital in London. The previous year, at ... Read more

November 21, 2018November 19, 2018

A Look Back at My Scleroderma Treatments Over the Years

Columns, Living The Dream

At the start of December, I will be celebrating my 20th year since first dragging my “tin-man” body to the Scleroderma Unit at the Royal Free Hospital in London. ... Read more

November 7, 2018November 6, 2018

Skin Cancer and Other Skin Complications for People with Scleroderma

Columns, Living The Dream

The skin is the largest organ in the body and is affected in most scleroderma patients. At the time of my diffuse scleroderma diagnosis in 1997, I had extremely ... Read more

October 24, 2018October 23, 2018

Looking Back on This Year’s Invisible Disabilities Week

Columns, Living The Dream

Invisible Disabilities Week took place from Oct. 14-20. The Invisible Disabilities Association explains how those with invisible disabilities can be misunderstood: “People often ask us to define invisible disability. ... Read more

October 10, 2018October 8, 2018

October Is Raynaud’s Awareness Month

Columns, Living The Dream

October is Raynaud’s Awareness Month. It is also the month when the beautiful autumnal shades over here in the U.K. remind me that my winter “full-time hibernation” is looming. ... Read more

September 26, 2018September 24, 2018

50 Shades of Blue

Columns, Living The Dream

Here in the U.K., autumn has arrived. The color changes of the natural landscape at this time of the year are stunningly beautiful. This annual display of nature showing ... Read more

September 12, 2018September 10, 2018

I’ve Found My Own Scleroderma Tooth Fairy

Columns, Living The Dream

Here in the Northern Hemisphere, the summer holidays have finished. However, as scleroderma patients, we know all too well that we do not have a holiday from this diagnosis. ... Read more

August 29, 2018August 27, 2018

Gastroparesis Awareness Month: Tests

Columns, Living The Dream

August is Gastroparesis Awareness Month. In this column, I highlight some of the tests carried out to determine stomach damage levels and the overall productivity of the digestive system ... Read more

August 15, 2018August 14, 2018

Bringing Awareness to Gastroparesis This Month

Columns, Living The Dream

August is Gastroparesis Awareness Month. Gastroparesis occurs when the stomach can’t pass food down to the small intestine, thereby affecting the digestion process. Gastroparesis is an unwelcome and debilitating symptom ... Read more

August 1, 2018July 30, 2018

Get Involved in Medical Research: Take Part, Raise Awareness

Columns, Living The Dream

At the start of this year, I delightedly joined the National Institute for Health Research (NIHR) as a patient research ambassador (PRA) for the dermatology and musculoskeletal departments at ... Read more

Pin It on Pinterest