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18 Hospital Hacks You Should Know About

A healthy diet does not cure scleroderma, but nutrition is essential for patients’ overall health. In this Gifted Life video, learn some hospital hacks that might come in handy for a possible next admission (hopefully not ever). “To everyone who is currently in a hospital bed, I hope…

After 10 Years with Systemic Sclerosis, What Can I Expect?

According to the Scleroderma Foundation, while there is no proven cure for scleroderma, much can be done to prevent, minimize or alleviate its effects and symptoms.  In this video from FESCA, taken at the patient congress at the 4th Systemic Sclerosis World Congress, Lisbon 2016, watch Dr. J. Lee talk…

Scleroderma Awareness: 5 Fast Facts about Scleroderma

Learn some fast facts about scleroderma, according to rheumatology.org: 1. Scleroderma is different from person to person and it can be very serious. Looking for more facts? Here are 20 Facts about Pediatric Scleroderma. 2. There are ways to alleviate the symptoms of Raynaud’s…

Drug Therapies for Scleroderma

In this Demystifying Medicine from McMaster University video, learn more about a number of different drug therapies which are currently being used for scleroderma or for some of the symptoms associated with the disease. According to the Scleroderma Foundation, while there is no proven cure for scleroderma,…

Unmasking the Causes of Scleroderma

In this Demystifying Medicine from McMaster University video, learn more about the causes of scleroderma. According to the Scleroderma Foundation, while there is no proven cure for scleroderma, much can be done to prevent, minimize or alleviate its effects and symptoms.  Since scleroderma is not caused…

What is “Sick” Supposed to Look Like?

https://www.youtube.com/watch?v=ATcwuizfouc In this video, watch Chanel White, “a mid-twenties, professional scleroderma patient by day, and an avid social media user by night” debate about one of the most recurring comments many patients hear: “But you don’t look sick!” According to the…

Systemic Sclerosis – Ilaria’s Story

According to the Scleroderma Foundation, while there is no proven cure for scleroderma, much can be done to prevent, minimize or alleviate its effects and symptoms.  In this Boehringer Ingelheim video, meet Ilaria, now a 43-year-old scleroderma patient, originally diagnosed…

20 Facts about Pediatric Scleroderma

According to the Cleveland Clinic, although scleroderma may be similar in adults and children, there are some specific characteristics that are more pronounced in children. Pediatric scleroderma is divided into systemic and localized diseases, which is further differentiated into subtypes based on clinical findings of skin involvement.