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Throughout June, our resident blogger and scleroderma patient Nicola Whitehill posted daily information and facts on scleroderma to mark Scleroderma Awareness Month. Read all Nicola’s Scleroderma Awareness Month articles here. While scleroderma is a rare disease with a certain lack of understanding and currently no cure, the…

Therapeutic plasma exchange (TPE) is a novel method for patients with scleroderma that may revolutionize the treatment of the disease and is considered a new hope for patients. The technique was recently presented at the American Society for Apheresis (ASFA) 2016 Annual Meeting in a presentation titled “Therapeutic Plasma Exchange…

1. Scleroderma Patient in Long-Term Remission with TPE Treatment At the end of 2015, a case study revealed a success in long-term treatment with therapeutic plasma exchange (TPE). Learn all about it here. 2. Scleroderma Education Project Delves into Organ Involvement in Recent Post In…

At the end of 2015, a case study revealed a success in long-term treatment with therapeutic plasma exchange (TPE). Learn all about it here. “Benefit of Long-Term Therapeutic Plasma Exchange Treatment in a Patient with CREST Syndrome (Limited Systemic Scleroderma): A 21-Year Success Story,” reported a successful symptom management…

Back in May, Scleroderma News had an exclusive interview with Edward Harris, the man behind the Scleroderma Education Project. Back then he presented a review and analysis of published data about therapeutic plasma exchange (TPE), a potential technique for treating scleroderma, at the American Society for Apheresis…

https://www.youtube.com/watch?v=hGKiYQRQY4Y In this Scleroderma Foundation, Greater Chicago Chapter video, listen to Michael J. Cuttica MD, Assistant Professor of Medicine, Northwestern Pulmonary Hypertension talking at a Scleroderma Patient Education Conference about the relationship of pulmonary arterial hypertension and scleroderma. Learn more about this relation here. Pulmonary…

According to the University of Michigan’s Department of Internal Medicine Patients, “Patients with limited scleroderma have the risk of developing progressive blood vessel narrowing in the lungs frequently in the absence of lung scarring and inflammation. This complication is called pulmonary arterial hypertension (PAH).” Learn more about…

Did you know that although women have a greater risk of systemic sclerosis (SSc), they may actually experience a lesser degree of symptoms? But what difference does it make and how does this impact scleroderma patients?  Researchers believe that the differences between male…

In this video from the Scleroderma Foundation, learn more about pulmonary arterial hypertension and scleroderma by Aryeh Fischer, M.D. Learn more about an algorithm that helps detect pulmonary hypertension in systemic sclerosis patients. Pulmonary arterial hypertension can be a serious complication of scleroderma. Last year, a review study suggested that borderline…

Exercise and physical activity are important to deal with the fatigue that may come from scleroderma. Too little activity can make fatigue worse. In this Jason Dougherty’s video, learn more about a study on the effects of aerobic exercise on muscle endurance training for patients with scleroderma.