Recently researchers identified for possibly the first time a case featuring simultaneous watermelon stomach and watermelon colon. In other words, both organs displayed the appearance of gastrointestinal lesions that resemble the stripes of a watermelon. Gastrointestinal symptoms are common in both limited or diffuse cases of systemic sclerosis.
It’s always good to know that we are not alone in our struggles. Did you know that the Scleroderma Foundation has more than 30 chapters throughout the U.S. —  and you can help it grow more? Here you can find a list of all chapters and ways to…
Autologous hematopoietic stem cell transplantation (HSCT), evaluated in 18 people with rapidly progressing systemic sclerosis, found the experimental therapy superior to standard treatments for the disease for this patient population. The retrospective report detailing these findings, “Autologous hematopoietic stem cell transplantation has better outcomes than conventional therapies in patients with rapidly progressive…
In this Gifted Life video, several transplant recipients answer the question: “If you could talk to your donor, what would you say?” Hear emotion filled answers that come with great gratitude for donors who gave the gift of life. Back in 2015, human stem cell transplantation…
The human body depends heavily on water as organs, cells and tissue all need water to function correctly. It’s important to remind yourself to constantly stay hydrated, especially on hot days. Staying hydrated is a big part of being healthy. A healthy diet does not cure scleroderma but nutrition…
In this Demystifying Medicine video from McMaster University, learn more about what an autoimmune disease is. Looking for more facts? Here are 10 Autoimmune Facts and Statistics “Autoimmune diseases cause your immune system to attack healthy tissue and cells instead of harmful substances.” Learn more about…
Certain terms that a scleroderma patient will hear over and over from doctors, physicians, and even fellow patients can sound totally alien — at first. Here’s what some of those terms mean in everyday language, according to the Scleroderma Foundation. 1. Arthralgia “Pain in a joint.”…
Recently, the Scleroderma Education Project released guidelines for patients and doctors wishing to know more about therapeutic plasma exchange (TPE) as a treatment option for limited scleroderma. TPE is a procedure where the plasma is replaced by a plasma substitute. The main purpose of the technique is to remove potentially harmful circulating…
A healthy diet does not cure scleroderma, but nutrition is essential for patients’ overall health. In this video by the Scleroderma Foundation, listen to Dr. Janet Pope’s session during the 2015 Scleroderma Foundation National Patient Education Conference about “Scleroderma Symptom Management-Why, & What Can be Done?”.
According to the Scleroderma Foundation, while there is no proven cure for scleroderma much can be done to prevent, minimize, or alleviate its effects and symptoms. With this candid and emotional video, learn more about the harsh reality of living with diffuse scleroderma and the deterioration it causes from patient …
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