Author Archives: admin

Scleroderma: Farah Khaleck’s Story

In this K24TV video, meet Farah Khaleck who was diagnosed with scleroderma just after turning 17 years old. According to the Scleroderma Foundation, while there is no proven cure for scleroderma much can be done to prevent, minimize, or…

5 HSCT Articles You Can’t Miss

1. HSCT Seen as Superior to Current Therapies for Severe, Progressive Sclerosis “Autologous hematopoietic stem cell transplantation (HSCT), evaluated in 18 people with rapidly progressing systemic sclerosis, found the experimental therapy superior to standard treatments for the disease for this patient population.”    2. Spotlight on an Ssc Patient and…

5 Misconceptions About Nutrition

A healthy diet does not cure scleroderma, but nutrition is essential for patients’ overall health. In this Demystifying Medicine from McMaster University video, learn more about five common misconceptions when it comes to food, nutrition, and healthy living. Back in 2015, a study demonstrated…

Nicola Whitehill’s Scleroderma Diet – A Patient’s Perspective

Recently researchers identified for possibly the first time a case featuring simultaneous watermelon stomach and watermelon colon. In other words, both organs displayed the appearance of gastrointestinal lesions that resemble the stripes of a watermelon. Gastrointestinal symptoms are common in both limited or diffuse cases of systemic sclerosis.

HSCT Seen as Superior to Current Therapies for Severe, Progressive Sclerosis

Autologous hematopoietic stem cell transplantation (HSCT), evaluated in 18 people with rapidly progressing systemic sclerosis, found the experimental therapy superior to standard treatments for the disease for this patient population. The retrospective report detailing these findings, “Autologous hematopoietic stem cell transplantation has better outcomes than conventional therapies in patients with rapidly progressive…

What Would You Say to a Stranger Who Saved Your Life?

In this Gifted Life video, several transplant recipients answer the question: “If you could talk to your donor, what would you say?” Hear emotion filled answers that come with great gratitude for donors who gave the gift of life. Back in 2015, human stem cell transplantation…

10 Ways to Stay Hydrated

The human body depends heavily on water as organs, cells and tissue all need water to function correctly. It’s important to remind yourself to constantly stay hydrated, especially on hot days. Staying hydrated is a big part of being healthy. A healthy diet does not cure scleroderma but nutrition…

Scleroderma: What is an Autoimmune Disease?

In this Demystifying Medicine video from McMaster University, learn more about what an autoimmune disease is. Looking for more facts? Here are 10 Autoimmune Facts and Statistics “Autoimmune diseases cause your immune system to attack healthy tissue and cells instead of harmful substances.” Learn more about…

10 Important Terms for Scleroderma You Should Know About

Certain terms that a scleroderma patient will hear over and over from doctors, physicians, and even fellow patients can sound totally alien — at first. Here’s what some of those terms mean in everyday language, according to the Scleroderma Foundation. 1. Arthralgia “Pain in a joint.”…