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Throughout June, our resident blogger and scleroderma patient, Nicola Whitehill, posted daily information and facts about ‪scleroderma to celebrate Scleroderma Awareness Month. Read all Nicola’s Scleroderma Awareness Month articles here. In this SclerodermaWA video, watch three people sharing their stories…

Project Scleroderma: Beneath the Surface has recently gained popularity, it was presented on the Oprah show and is highly anticipated by the scleroderma community. But what is this project and how was it started? Christy McCaffrey lost her mother to scleroderma in September of 2009 and she began…

In a recent news, we reported that a research team has developed a cannabinoid-based drug that stimulates not only one, but two, receptors believed to be involved in fibrosis development in scleroderma. The drug, VCE-004.8, prevented the formation of fibrosis-promoting myofibroblasts in culture and stopped fibrotic changes…

Bob Saget is a well-recognized comedian, television host, and actor. But do you know that he is also an advocate for scleroderma? In fact, Saget is a member of the Scleroderma Research Foundation’s board of directors. Though his sister died from the chronic and currently incurable disease, Saget’s journey with scleroderma…

Exercise and physical activity are important to deal with the fatigue that may come from scleroderma. Too little activity can make fatigue worse. In this Jason Dougherty’s video, learn more about a study on the effects of aerobic exercise on muscle endurance training for patients with scleroderma.

According to the Scleroderma Foundation, here are some scleroderma-related conditions you should know: 1 – Gastrointestinal Issues People with systemic scleroderma may experience some digestive system and gastrointestinal tract irregularities that range from the mouth to the anal canal. Thickening and fibrosis (or scarring) of the tissues may happen because of…

In this Boehringer US video, learn more about systemic sclerosis, also known as scleroderma. According to the Scleroderma Foundation, while there is no proven cure for scleroderma, much can be done to prevent, minimize or alleviate its effects and symptoms. …

A healthy diet does not cure scleroderma, but good nutrition is essential for patients’ overall health. In these presentations from FESCA at the Patient Congress at the 4th Systemic Sclerosis World Congress, Lisbon 2016, listen to Prof. A. Tyndall on “Changing Faces and Self-Esteem”, M. Sauvé on “Readjusting…

Back in February, researchers presented a study investigating the therapeutic effect of the monoclonal antibody CM-101 in animal models of systemic sclerosis (SSc) and idiopathic pulmonary fibrosis (IPF). Many readers of Scleroderma News have reached out and urged us to do more to…

Back in February, researchers presented a study investigating the therapeutic effect of the monoclonal antibody CM-101 in animal models of systemic sclerosis (SSc) and idiopathic pulmonary fibrosis (IPF). In this Demystifying Medicine from McMaster University video, learn more about diseases associated with scleroderma, specifically pulmonary diseases including fibrosis.