Author Archives: admin

With the holiday season in full swing, it’s the perfect opportunity to take a look back at 2017. It’s been a year full of ups and downs, and while there were definitely quite a few low moments, there were certainly quite a few highs. To celebrate the year that was,…

This podcast, created and produced by phaware, features Dr. Stephen Mathai, an associate professor of medicine at the Johns Hopkins University School of Medicine. It is being offered today on Scleroderma News because Dr. Mathai discusses how scleroderma may increase the risk of developing pulmonary hypertension. You may listen to the podcast directly, or…

This podcast, created and produced by phaware, features Dr. Stephen Mathai, an associate professor of medicine at the Johns Hopkins University School of Medicine. It is being offered today on Scleroderma News because Dr. Mathai discusses how scleroderma may increase the risk of developing pulmonary hypertension. You may listen to the podcast directly, or…

According to the Cleveland Clinic, although scleroderma may be similar in adults and children, there are some specific characteristics that are more pronounced in children. Pediatric scleroderma is divided into systemic and localized diseases, which is further differentiated into subtypes based on clinical findings of skin involvement.

Scleroderma renal crisis a problem that may occur in patients who suffer from scleroderma — an autoimmune condition that causes an overproduction and accumulation of collagen in the tissue, affecting the skin and internal organs, including the kidneys. In this Demystifying Medicine video from McMaster University, learn more about this rare…

Scleroderma (SSc) is a rare but progressive autoimmune disease that mainly affects women between the ages of 20 and 50, although men and children can also develop the disease. Many patients who have scleroderma also develop pulmonary arterial hypertension (PAH). MORE: Three possible risks for scleroderma 1. According to the Scleroderma…

In this special article, Scleroderma News Today‘s resident blogger and scleroderma patient, Nicola Whitehill shares her tips on how to better manage Raynaud’s during a seasonal change. 1. Don’t forget to take your medication.  It’s important not to miss any dose of your medication. Try to organize your treatment plan…

Bob Saget is a recognized comedian, television host, and actor. But do you know that he is also an advocate for scleroderma? In fact, Saget is a member of the Scleroderma Research Foundation’s board of directors. Though his sister died from the chronic and currently incurable disease, Saget’s journey with scleroderma started…

According to the John Hopkins Scleroderma Center, scleroderma takes a big toll on your body, both emotionally and physically. There are a number of body parts that may be directly or indirectly affected by scleroderma and should be monitored. Since scleroderma varies from patient to patient, the symptoms and physical effects are often very…

The U.S. Food and Drug Administration (FDA) has approved Imbruvica (ibrutinib) to treat adult patients with chronic graft-versus-host-disease (cGVHD) who failed prior therapy, such as corticosteroids. Stem cell transplants have been a standard of care for patients with blood disorders like leukemia and myeloma. Pre-clinical and early clinical studies suggest…