Sine scleroderma is the term used when there is no skin involvement with the disease. (“Sine” is latin for “without.”) Typically, scleroderma patients experience problems with the skin as the disease causes the body to overproduce collagen. However, in sine scleroderma, internal parts of the body can be affected with fibrosis…
Even though scleroderma affects around 2.5 million people worldwide including 300,000 people in the U.S., it’s a disease that few people know about. The rare autoimmune disease affects the skin and internal organs, but just how serious is it? We’ve put together some information that explains how serious the disease can be, who it affects and…
According to a report in the Daily Telegraph, an Australian family is set to tackle an ambitious 500,000-step journey to help raise awareness and money for scleroderma. Find out more about scleroderma from diagnosis to symptoms here. The 450km (280 miles) walk from Mount Annan to Ariah Park in…
Raising awareness of scleroderma is of ongoing importance and every little bit of publicity and every story highlighting the disease works towards this. The Facebook group Live, Breathe and Fight provides a platform for scleroderma sufferers worldwide to reach out to one another and to find out more information about…
Many people with scleroderma suffer from neuropathy and Raynaud’s in the winter. In this video from Rainbow in Bloom, the vlogger shares some of her hacks for coping with the cold winter weather and avoiding some of the symptoms of scleroderma-associated conditions. Read about seven common…
In this video from Demystifying Medicine, various medical experts talk about different aspects of scleroderma care at the Hamilton Scleroderma Group Patient Education Forum held on November 29, 2016. Scleroderma patients share their concerns in an Australian study. Find out more here. Some of the topics covered by…
February 28 is international Rare Disease Day, a day dedicated to raising public awareness of a myriad of diseases that many people know very little (if anything) about. One of the day’s main goals is to highlight the difficulties patients of rare diseases face in terms of diagnosis, treatment, and everyday…
This CBS Los Angeles video shares Kristine Cruz-Munda’s story. Though Kristine often receives compliments from strangers about her glowing skin, her skin is glowing is because her body overproduces collagen. Kristine has scleroderma. Read about the town that is rallying around its police chief who has…
A recent Australian study of 30 scleroderma patients revealed a list of some of the things they are most concerned about. Scleroderma patient Crystal shares the reality of living with the disease. When interviewed, patients mentioned being worried about the body changes scleroderma inflicts and how they would cope, along…
Once you have been diagnosed with scleroderma you will probably be referred to a rheumatologist for your ongoing treatment. You may also need to see other specialists since scleroderma can affect many different areas of the body. Town rallies around police chief with scleroderma. Find out more here. According to the Mayo Clinic,…
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