Wendy Henderson,  —

McCoy Penland was just four years old when her mother, Tara Penland, noticed she had a sudden lack of energy and was constantly scratching her body. As time went on, her trunk started to harden. At first, doctors thought that McCoy was suffering from eczema and that the…

This video from FESCA taken at the fourth Systemic Sclerosis World Congress in Lisbon in 2016 shares two presentations dedicated to the progression of scleroderma and how it affects patients on a long-term basis. Discover six tips for eating well with scleroderma. First up is Dr. Jason Lee…

Sleep is important for everyone, and even more so for people who suffer from chronic illness such as scleroderma. Going without sleep can make symptoms of scleroderma much worse so it’s important to see your doctor if you’re having trouble sleeping. Sleep in chronic illnesses with a focus…

  Elie Ramia was just three years old when her mother, Terry-Jo noticed a strange bruise on the back of her leg. After being diagnosed as eczema and then later, a birthmark, Terry-Jo accepted the doctor’s word and the family carried on as usual. 20 facts you should…

In this video from the Greater Chicago Chapter of the Scleroderma Foundation, we see a presentation from the Scleroderma Patient Education Conference held on October 15, 2016 in Chicago. Disease severity in scleroderma may be picked up on a blood test. Find out more. Dr. Shervin Assassi,…

In this Scleroderma Strong video from Jessica M., Jessica describes what scleroderma is and the affect it can have on the digestive tract. She then talks about how diet can negatively or positively affect a person with scleroderma and offers some practical advice about eating and diet.

In this video from the Greater Chicago Chapter of the Scleroderma Foundation, we see a presentation from the Scleroderma Patient Education Conference, held on October 15, 2016 in Chicago. PAH Medications Tracleer and Opsumit, seen to block fibrosis in scleroderma. Find out more.  Dr. Dematte from the…

There have been many studies that have come to the conclusion that scleroderma patients are more at risk of contracting certain cancers. Lung cancer, lymphoma, breast cancer and skin cancer are some of the diseases which are most often cited as being of particular risk to scleroderma patients according…

Despite there being approximately 300,000 people in the U.S. who have scleroderma, it seems that many people are either completely unaware of the disease or are confused as to what the disease actually is. With this in mind, we’ve compiled a list of common misconceptions about scleroderma so non-patients can…

It can be stressful when someone you love is diagnosed with scleroderma–you’ll be concerned and worried, and probably unsure what to do. We’ve compiled a list of useful tips to help you through those first few bewildering weeks so you can offer the best support to your loved one at this…