Winter is a perilous time if you have a compromised immune system, but you can’t stay alone inside for four months. You have to get on with your daily life, and just hope you don’t succumb to other people’s bugs and illnesses. However, there are some foods that can help you avoid catching a cold…
In this moving video from Tom Seawell, Paul Cetani tells the story of how he was diagnosed with idiopathic pulmonary fibrosis (IPF). A study found that scleroderma-related pulmonary fibrosis was linked to right ventricular dysfunction. Paul was diagnosed with IPF in 2009 and his lungs were so bad…
Many women with scleroderma may feel self-conscious about changes to their skin, particularly on their faces. They’ll often apply makeup to try and cover up any changes without realizing that they might need to adopt a new technique. In this video from Scleroderma SC, makeup artist David Nicholas demonstrates…
Farah Khaleck was just 17 when she first started experiencing the symptoms of the autoimmune disease scleroderma. In this vlog, she’s waiting to be interviewed on Kenyan television about her life. Watch Farah being interviewed on Kenyan television about her journey with scleroderma. The first symptoms of…
According to WCPO Cincinnati, a town is rallying around its chief of police and raising funds to cover his medical expenses. Read about seven common complications of scleroderma here. Darryl Haussler has served Butler County, Ohio for more than 20 years and now the town wants to repay…
In this video from The MFA Companies, the CEO of the Scleroderma Foundation, Robert Riggs, talks a little about what the organization does for its members. He explains that the non-profit sector is growing and becoming one of the biggest sectors in the workforce. Chemotherapy isn’t just…
Living with scleroderma is tough, both physically and mentally. Diagnosed with systemic scleroderma at six years old, Bailey Schwartz shares what it was like growing up with the disease and how difficult it was for her parents, who were told that it was unlikely she would live to see her seventh…
Many scleroderma patients suffer from a chronic cough, particularly if they suffer from interstitial lung diseases such as pulmonary fibrosis, but a cough could also affect the severity of these diseases and that of GERD. Find out more about scleroderma, from diagnosis to symptoms. GERD or gastroesophageal reflux disease is a digestive complaint…
https://www.youtube.com/watch?v=SpKPLRTch44 In this video from mattandandyshowreel, Tasha Ault introduces us to her two cats Makai and Satine, who work as therapy cats. Find out about the reality of living with scleroderma here. Tasha takes the two cats to visit people who are either sick at home or in…
When most people think of chemotherapy, they immediately assume that it’s a treatment for cancer. Very few people realize that chemotherapy can also be an effective treatment for people with autoimmune diseases. Interstitial lung disease in scleroderma patients can be treated with chemotherapy and immunosuppression. Find out more. Chanel…
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