For scleroderma patients, Raynaud’s phenomenon symptoms are much more apparent in the winter when the brutal cold takes its toll. However, there are ways to manage the condition that can help sufferers quickly recover from a flare and get the circulation flowing again. We’ve put together a list of six tips to…
Many scleroderma patients suffer from gastroesophageal reflux disease (GERD), where the digestive acid in the stomach comes up the esophagus causing a burning sensation often known as heartburn or acid indigestion. Discover seven common misconceptions about scleroderma. While many healthy people suffer from acid reflux and experience mild…
Stem cells have the ability to duplicate and develop into various kinds of cells within the body, such as skin, bone, tissue, etc, and researchers believe stem cells can be used to repair damage in the body. In some scleroderma patients, stem cell transplants appear to reset autoimmunity. There are different types of stem…
It can be difficult to remain positive and look forward in life when you’re dealing with a chronic illness like scleroderma. In this new YouTube channel, Rainbow in Bloom, its founder talks about her journey so far with scleroderma. Discover seven facts about scleroderma-related pulmonary hypertension. The star…
In this video from Scleroderma Colorado, we meet Amy. Amy was diagnosed with diffuse scleroderma in September 2013. Discover 10 important symptoms of scleroderma. For Amy, the first sign of the disease came when her hands started turning blue while driving. At that point, doctors couldn’t figure out…
In this 2013 video from Grace Sherry, we meet 15-year-old Shannie who was diagnosed at a young age with morphea--a localized form of scleroderma which is the most common form of the disease in young adults. Discover 20 facts you should know about pediatric scleroderma. Morphea…
In this video from the Scleroderma Foundation, Greater Chicago Chapter, registered dietitian Beth Doerfler answers scleroderma patients’ questions about diet. She shares which foods they should eat and which they should avoid to help manage their symptoms and improve their overall health. Explaining the long-term progression of scleroderma.
This video from Adam Karm titled “The Best Mom in the World” is all about the Packer family. Thirty-three-year-old Stephanie Packer was diagnosed with diffuse scleroderma in 2012 and now, as a result, suffers from pulmonary fibrosis. Find out more about how scleroderma can affect the lungs. Stephanie…
For people living with scleroderma, daily life can be extremely painful. The condition affects every aspect of their lives. To date, there is no cure for scleroderma, only medications and treatments that address some of the symptoms of the disease. Could a topical paste prevent skin hardening in…
In this honest video from Park Triangle Productions shared in 2011, Dawn Rone shares what it’s like to have scleroderma. Meet several scleroderma patients and find out about their journey with the disease. Dawn talks about the brutality of the disease and how much she has changed…
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