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Easy Relaxation Techniques for Scleroderma

Simple Stress Relievers Everyone struggles to relax- even more so when someone tells us to relax. There’s something about those words — relax, be calm, and calm down — that trigger a deep emotional response in most of us. With a chronic disease, relaxing is easier said than done. These easy relaxation techniques are…

4 Videos with Skin Care Tips for Scleroderma Patients

Welmedix HomeCarePro produced a video series with expert tips about how to care for skin affected by scleroderma. In these videos, Paula Erwin-Toth, former director of WOC Nursing Education at Cleveland Clinic, teaches about how to take care of your skin, how to manage neuropathy and the impact on…

13 Scleroderma Foundation Resources to Help You

  1. Scleroderma Voice Magazine Members of the Scleroderma Foundation benefit from a free subscription to the Scleroderma Voice Magazine. This publication is issued four times a year and showcases patients stories, scleroderma research information, and much more.   2. Scleroderma Information Packet  A free comprehensive packet of information…

Scleroderma Quote: Jason Alexander

Jason Alexander on Scleroderma Jason Alexander doesn’t have scleroderma but his sister did. After watching his beloved sister Karen Greenspan’s struggle with the debilitating disease, Alexander became a scleroderma advocate. Karen passed away in 2014. In this scleroderma quote, Jason Alexander reveals the progression of her disease.  …

10 Important Symptoms of Scleroderma

Here are 10 symptoms of scleroderma and what they mean, according to the Scleroderma Foundation. 1. Acid reflux Acid reflux refers to stomach acid that returns back into the digestive track and ends up irritating the esophagus. It can be distressing and can cause other problems.

7 Tips for Living with Scleroderma

There are some simple steps you can take to help maintain your general health according to the Scleroderma Research Foundation. 1. Avoid smoking. Throughout June, our resident blogger and scleroderma patient Nicola Whitehill posted daily information and facts on scleroderma to mark Scleroderma Awareness Month.

Science of Depression

According to recent reports, a satisfying marriage or long-term domestic relationship helps ease depression in women with systemic sclerosis compared to single woman with disease-related symptoms of depression. But do you know the complex science of depression? In this video shared with AsapSCIENCE, you can learn more…

Scleroderma: Farah Khaleck’s Story

https://www.youtube.com/watch?v=A9qzbScw4Gw In this K24TV video, meet Farah Khaleck who was diagnosed with scleroderma just after turning 17 years old. According to the Scleroderma Foundation, while there is no proven cure for scleroderma much can be done to prevent, minimize, or…

5 HSCT Articles You Can’t Miss

1. HSCT Seen as Superior to Current Therapies for Severe, Progressive Sclerosis “Autologous hematopoietic stem cell transplantation (HSCT), evaluated in 18 people with rapidly progressing systemic sclerosis, found the experimental therapy superior to standard treatments for the disease for this patient population.”    2. Spotlight on an Ssc Patient and…

5 Misconceptions About Nutrition

A healthy diet does not cure scleroderma, but nutrition is essential for patients’ overall health. In this Demystifying Medicine from McMaster University video, learn more about five common misconceptions when it comes to food, nutrition, and healthy living. Back in 2015, a study demonstrated…