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10 Things Chronic Patients Do But Shouldn’t

Living with a chronic illness is never easy. When you get diagnosed with a disease that is going to be with you for the rest of your life, like scleroderma, you have to adapt to your new life. But how can you do that? What should you keep doing…

How a Young Boy Makes Sick Children Smile

This Sewing Hope video from The Feed is all about the awesome Campbell Remess, a 12-year-old boy from Hobart, Tasmania, Australia. Unlike other boys his age, Campbell is not interested in playing video games or watching movies–he prefers to spend all of his free time hand-making teddy…

Skin Care and Wound Management in Systemic Sclerosis

“The skin is the largest organ in the body and is affected in most scleroderma patients. The exception to this rule is the limited subset version of scleroderma patients.” In this Scleroderma Foundation video, watch Alexandria Crowe, R.N., explaining what happens to the…

Scleroderma Testimony: The Story of McCoy Penland

McCoy Penland was four years old when her mother noticed a sudden lack of energy and that her daughter was constantly itchy. It took the family three months for McCoy to be diagnosed with scleroderma. Five years later, McCoy is a good student, great soccer…

9 Ways to Motivate Yourself to Exercise

Exercising and keeping as fit as possible is encouraged for everyone. When it comes to scleroderma, exercise and physical activity are important to deal with the fatigue that may come from the disease. Here are nine ways to motivate yourself to get out there and start exercising, based on…

9 Things You Shouldn’t Say to Someone With a Chronic Illness

It’s no surprise that sometimes people say things they don’t want to–or mean to. Especially when they’re talking to someone with a disease like scleroderma, that is not fully understood by those who don’t live with it. To help you learn more about what you shouldn’t say to chronically ill…

Yoga Breathing for Symptom Management in Scleroderma

Gentle exercise can be beneficial to scleroderma patients and yoga can be a perfect fit for because of its low intensity and slow-paced comfort. In this Scleroderma Foundation video, watch Sundar Balasubramanian, Ph.D talk about basics of Yogic Breathing both in theory and practice…

Nutritional Benefits of Sweet Potatoes for Scleroderma

Nutritious Sweet Potatoes Do you enjoy sweet potatoes? Did you know they’re a super food that contain many nutritional benefits? The World’s Healthiest Foods, list numerous benefits of incorporating sweet potatoes into your diet. Some of these health benefits include increasing your antioxidant intake, consuming more anti-inflammatory…

Fibrosis: The Ugly Side of Collagen

“The skin is the largest organ in the body and is affected in most scleroderma patients. The exception to this rule is the limited subset version of scleroderma patients.” In this Scleroderma Foundation video, wacth Carol A. Feghali-Bostwick, Ph.D., talk about features of abnormal…