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9 Things You Shouldn’t Say to Someone With a Chronic Illness

It’s no surprise that sometimes people say things they don’t want to–or mean to. Especially when they’re talking to someone with a disease like scleroderma, that is not fully understood by those who don’t live with it. To help you learn more about what you shouldn’t say to chronically ill…

The Role of Extracorporeal Photopheresis in Scleroderma

In this Scleroderma Foundation, Greater Chicago Chapter video, learn more about the photopheresis and how it can impact scleroderma from Jaehyuk Choi, assistant professor of the Department of Dermatology and director of the extracorporeal photopheresis unit at Northwestern University.  Learn more about about…

Management of Daily Skills: Hand and Face Exercises

Scleroderma is a rare autoimmune condition whereby the body produces too much collagen, which presents widespread symptoms in different parts of the body. Learn more about the main areas of the body affected by scleroderma. In this Scleroderma Foundation video, Janet Poole, Ph.D. talks about…

10 Things Chronic Patients Do But Shouldn’t

Living with a chronic illness is never easy. When you get diagnosed with a disease that is going to be with you for the rest of your life, like scleroderma, you have to adapt to your new life. But how can you do that? What should you keep doing…

How a Young Boy Makes Sick Children Smile

This Sewing Hope video from The Feed is all about the awesome Campbell Remess, a 12-year-old boy from Hobart, Tasmania, Australia. Unlike other boys his age, Campbell is not interested in playing video games or watching movies–he prefers to spend all of his free time hand-making teddy…

Skin Care and Wound Management in Systemic Sclerosis

“The skin is the largest organ in the body and is affected in most scleroderma patients. The exception to this rule is the limited subset version of scleroderma patients.” In this Scleroderma Foundation video, watch Alexandria Crowe, R.N., explaining what happens to the…

Scleroderma Testimony: The Story of McCoy Penland

McCoy Penland was four years old when her mother noticed a sudden lack of energy and that her daughter was constantly itchy. It took the family three months for McCoy to be diagnosed with scleroderma. Five years later, McCoy is a good student, great soccer…

9 Ways to Motivate Yourself to Exercise

Exercising and keeping as fit as possible is encouraged for everyone. When it comes to scleroderma, exercise and physical activity are important to deal with the fatigue that may come from the disease. Here are nine ways to motivate yourself to get out there and start exercising, based on…

9 Things You Shouldn’t Say to Someone With a Chronic Illness

It’s no surprise that sometimes people say things they don’t want to–or mean to. Especially when they’re talking to someone with a disease like scleroderma, that is not fully understood by those who don’t live with it. To help you learn more about what you shouldn’t say to chronically ill…