13 Scleroderma Foundation Resources to Help You

1. Scleroderma Voice Magazine

Members of the Scleroderma Foundation benefit from a free subscription to the Scleroderma Voice Magazine. This publication is issued four times a year and showcases patients stories, scleroderma research information, and much more.

2. Scleroderma Information Packet 

A free comprehensive packet of information from the Scleroderma Foundation featuring everything you want to know about the disease.

3. Products That Benefit

This list will help you to find some products that may assist you in your life with scleroderma

Here are some scleroderma-related conditions you should look out for according to the Scleroderma Foundation.

4. My Voice

This page showcases some stories from teens and children who live with scleroderma. Remember, you’re not alone!

5. Discussion Board

A 24/7 on-line support group and discussion community with members and patients from all over the world.

6. Weekly eLetter

The Scleroderma Foundation has an electronic newsletter out every Friday. This way you can stay up-to-date with all the latest updates on scleroderma research, resources, and other news.

According to the Scleroderma Foundation, while there is no proven cure for scleroderma, much can be done to prevent, minimize, or alleviate its effects and symptoms. 

7. Buzzworthy Reads

Read the latest Scleroderma Foundation news and related issues.

8. NeedyMeds

Learn more about this way to save on your prescription medications.

9. Help For You and Your Family

Need help with legal and disability advice, insurance, alternative therapies, government agencies?  This page provides all sorts of contacts to get you started.

Here are some scleroderma-related conditions you should look out for according to the Scleroderma Foundation.

10. Find a Scleroderma Research Center

Find a Scleroderma Foundation center, approved by the organization’s Medical and Scientific Advisory Board, near you. The board ensures that patients are provided with knowledgeable resources about diagnosis, care, and research at the centers.

11. Other Related Organizations and Helpful Links

Check out other health related organizations you may find helpful.

12. Registries

Find out where data from patients and their family members is collected and analyzed to gather information and learn more about Scleroderma.

13. Recommended Reading 

Read any of these books about scleroderma. All are recommended by the foundation.

According to the Scleroderma Foundation, while there is no proven cure for scleroderma, much can be done to prevent, minimize, or alleviate its effects and symptoms.