One of the first noticeable symptoms of my scleroderma was ice-cold fingers and toes. While they would morph into a lovely variety of colors, it hurt when they did their magic, color-changing routine. I admit I felt rather patriotic when they turned red, white, and blue (and sometimes…
I vividly remember sitting in the car after my pulmonologist broke the news that my lungs were scarred and I had interstitial lung disease. It was the summer of 2015, a year after my scleroderma diagnosis. According to everything I found online, this put me on the fast…
I sometimes find myself envious of other people. I’ll look at a person walking down the street and think, “What if my life path was different?” It’s not uncommon for a person with scleroderma to try to rationalize why their life is the way it is, and why…
Back when we had to patiently sit through TV commercials, I would shake my head in confusion after hearing all the possible side effects of the medications being advertised. I was baffled that someone would be crazy enough to risk their lives for a prescription. Until I became that person.
I remember as a child having no fear. I would throw myself headfirst into any and everything, not caring whether it was safe or the right thing to do. I just let go of all my inhibitions and made that leap. I wish I could say my fearlessness stayed with…
The last few months have been a whirlwind for me due to all of the life-changing events I’ve been experiencing. Autoimmune disorders and stress do not mix well, and it took me a while to recover from moving, starting a new career, and experiencing a scleroderma flare-up. I…
I may not be able to blow out all 44 candles in one breath, but I did get to live another wish. I’m here, and I’m celebrating another trip around the sun with nothing but gratefulness and love in my heart. Birthdays no longer just tack a year onto my…
As a woman with scleroderma, I’ve faced many unknowns regarding my body and health over the last 21 years. Every day is a new adventure in my own “series of unfortunate events.” Since my diagnosis, I’ve restructured my life to make my health a priority and become hyperaware of…
How many times have you asked yourself, “Is this scleroderma?” Odd sensations, abnormal changes, pain, and even visible deformities — there’s no shortage of strange symptoms with this disease. I used to embark on a fruitless journey to discover answers, spending hours researching and probing fellow patients in support…
About a month ago, I popped into Target. I grabbed a cart and started to sanitize it. While wiping the handle, I heard laughter behind me. A group of teenage girls were waiting for the sanitizer wipes. Now, I know I don’t necessarily look sick. If you knew nothing…
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