Author Archives: Lisa Weber

4 Strategies That Ease My Gastroparesis Symptoms

Date night with my husband resulted in mounds of clothing piling up on the bench in my closet. I was having a meltdown similar to that of a teenage girl with a zit on prom night. Nothing fit. I couldn’t zip up skirts or button pants. My stomach had suddenly…

Managing Medications With the Perfect Pill Organizer

“Did I take my pills?” I wonder as I hold three giant capsules. I stare at them and try to backtrack through my day, but I have no idea. All my mornings collide together. Now I’m faced with the choice between skipping my lifesaving medicine or taking an extra dose,…

Wearing a Fake Smile to Get Through the Day

Can you recall a time when you smiled so much that your cheeks became sore? Perhaps it was a day of joy and celebration — one you’ll happily remember forever. Or maybe you have a chronic illness and wear a smile all day to avoid ruining the party for everyone…

Should I Go to the Emergency Room or Wait It Out?

The pounding of my heart echoes clearly in my ears. I can see the thumps through the skin on my chest. It’s erratic, beating slowly and calmly one minute, and out of control the next. It’s like a toddler is in my chest playing a new set of drums —…

My Husband Lives With Scleroderma, Too

People often ask me how I continue to battle scleroderma. My answer mirrors that of many others fighting awful diseases: I have no other choice. I may not have chosen to live with scleroderma, but my husband, Ross, does every single day. In the beginning, we fell in love hard…

Let’s Get Ready to Rumble in the Fight Against Scleroderma

The bell echoes loudly, signaling the fight’s start. The energy and stakes are high. Gloves on, two boxers face off with intense determination. Only one will be crowned champion. Living with scleroderma is uncomfortably similar to being a heavyweight boxer. Every day is spent tirelessly preparing for the next…

During Flare-ups, My Scleroderma Body Pauses Life

Messy is the best word I can use to describe a flare-up caused by scleroderma. My home, my thoughts, my life — they all unravel, and it’s messy. When my body is weak and consumed by aches, I spend a lot of time under blankets. During a flare-up, my…