Author Archives: Amy Baker

The Challenges of Dating With Scleroderma

Dating in general is hard. You swipe right, swipe left, move up and down, or something like that. Maybe you even do the hokeypokey. And online dating? No way, no how. Dating with a chronic illness like scleroderma is exponentially more challenging and terrifying. It’s like going to a carnival…

Parenting With Chronic Illness Is Hard — So I Lie

“Hey, Mom, can you play with me?” my son, with his boundless energy, asks me enthusiastically, his eyes brimming with excitement. My heart is whole, and for today, I am still his favorite play buddy. Anyone with a chronic, debilitating illness will understand the following few words. “Sure, honey,…

Skin, Hives, and Scleroderma

Scleroderma, lupus, rheumatoid arthritis, Sjögren’s syndrome — all of these are autoimmune diseases. And they’re invading my every cell. I’m displeased by how these diseases have made themselves at home…

Getting Out of Bed Is No Simple Task With Scleroderma

“Get out of bed … now!” Are you kidding me? Getting out of bed would take forever. “Time waits for no one. Embrace the suck, Amy.” Stop yelling at me! I’m getting there. (And by getting there, I mean lying there not moving, with hot, silent tears rolling down my…