Columns

I notice that something happens whenever I feel unwell and overwhelmed by my disease and the life challenges it brings. During these times, I get the overwhelming urge to run away. There is a particular place to which I escape. Spending some time there…

My filtering system is wonky.  Kidney issues are likely the first things that come to mind when discussing faulty filter systems in a scleroderma column. Fortunately, I have escaped those nasty complications. My psychological filter is faulty. I feel as if this…

Here in the U.K., autumn has arrived. The color changes of the natural landscape at this time of the year are stunningly beautiful. This annual display of nature showing off its true colors provides a reminder that winter is on its way. And winter is the nemesis season for…

“So, have they given you any indication about your prognosis regarding longevity?” I wasn’t really prepared for that question. After all, I was just at the podiatrist getting my feet looked at. (It seems the hardening of my plantar fascia has been making…

It’s 6 p.m. on a Sunday evening and I’m ready to eat dinner. It’s beneficial to eat early enough to allow food at least three hours to digest before lying down. My plate is served with everything already cut into small pieces. I grasp the fork at an…

Life is an enigma; a beautifully twisted maze that evolves daily around us. Some individuals have a pretty good idea of how to find their way through, while others are lost and wandering, hitting dead ends. When living with a debilitating chronic illness, it’s easy to feel lost in…

Here in the Northern Hemisphere, the summer holidays have finished. However, as scleroderma patients, we know all too well that we do not have a holiday from this diagnosis. More often than not, the management of the multi-complex symptoms makes for a full-time job. I have previously…

August is Gastroparesis Awareness Month. In this column, I highlight some of the tests carried out to determine stomach damage levels and the overall productivity of the digestive system process. Gastroparesis occurs when the stomach cannot pass food down to the small intestine, thereby…

Continual flare–ups have been a huge challenge for me over the past few months. It seems that my days are filled with … nothing. Nothing at all, except resting on my recliner while I wait to feel better. There are only so many…

There is a phrase that gets me going every time it is offered up to me. It drives me nuts. It usually happens when I am trying to explain why I cannot do something that entails using a part of my body that scleroderma has permanently…