Columns

For Raynaud’s Awareness Month, Show Your Colors

October is Raynaud’s Awareness Month. However, for Raynaud’s patients, everyday, whatever the month, is a Raynaud’s day. There is no cure. Raynaud’s is the constriction of blood vessels in response to a decrease in temperature, and/or stress. This narrowing of the blood vessels can be extremely painful,…

My Scleroderma ‘Life Hacks’

              This week my husband Max surprised me with a day trip to Akaroa — he must have read my last column! Outings such as this can be big undertakings for the chronically unwell.  As I began to plan what was needed…

Fake Warts, New Pajamas, and Four Words that Changed My Life

Editor’s Note: In Lisa Goodman-Helfand’s debut article for her column “Comfortable in My Thick Skin,” she tells her own scleroderma diagnosis story. Her experience with the disease began at age 10, when little was understood about scleroderma. Read about the start of her journey here. We’ve all experienced pivotal moments that are forever…

Skin Tests with Scleroderma

The skin is the largest organ in the body and, more often than not, will be affected by scleroderma, as the name “sclero” — thickening — and “derma” — skin — implies. The exceptions are a SINE scleroderma diagnosis, and a limited scleroderma diagnosis, both of which could present…

My Scleroderma ‘Patient Persona’ – Unmasked Again!

Social media is an intriguing thing, isn’t it? It can be wonderful to have sites such as Scleroderma News at our fingertips, and I do believe the internet is a platform that can provide encouragement, the latest information, and a sense of community. However, one pitfall of social media that…

An Ordinary Girl with an Extraordinary Disease

Hello, and welcome to my ordinary girl column. This is my very first piece of writing, so it makes sense to introduce myself and “set the scene” for what I hope will be a useful and helpful read for those interested. First, it’s been three years since I was diagnosed…