7 Common Misconceptions About Scleroderma


Despite there being approximately 300,000 people in the U.S. who have scleroderma, it seems that many people are either completely unaware of the disease or are confused as to what the disease actually is. With this in mind, we’ve compiled a list of common misconceptions about scleroderma so non-patients can better understand the condition. Based on information from Health Central.


Scleroderma is Contagious

No, it’s really not. You can go ahead and touch someone with scleroderma–you won’t catch it. Scleroderma is an autoimmune disease where there is an overproduction of collagen and this is what causes the tightening of the skin that you may see, not an infection or bacteria of any sort.

Read our seven tips for new caregivers for scleroderma patients.


Only the Skin is Affected by Scleroderma

It depends on the type of scleroderma–localized scleroderma typically only affects the skin but systemic scleroderma can affect any organs in the body. Because the skin is the body’s largest organ it stands to reason that this is the one most affected by the disease. However, scleroderma patients may also suffer from problems with their lungs, kidneys, heart, stomach, muscles, tissue and blood vessels.

Find out about skin care and wound management for scleroderma. 



Scleroderma is an Adult Disease

While it’s more common for women in their childbearing years to be diagnosed with scleroderma, children can also get the disease. Localized scleroderma is more common among children, whereas adults tend to be diagnosed with systemic scleroderma–usually between the ages of 25 and 55.

Discover 20 facts about pediatric scleroderma here.



Diagnosis of Scleroderma is Straightforward

Because no two scleroderma patients experience the exact same symptoms, scleroderma is extremely difficult to diagnose. In addition, many of the symptoms mimic those of other autoimmune diseases. However, there are some characteristics of the disease which are unique to scleroderma and therefore if presented in a patient makes diagnosis much easier.

Find out more about scleroderma, from diagnosis to symptoms.



Scleroderma is a Genetic Disease

While there is research being conducted into whether there are certain genes that may be to blame for the development of scleroderma, it is not considered a genetic disease that is passed down through families.

Discover nine things you shouldn’t say to someone with a chronic illness.



Scleroderma is Curable

Sadly this is not true. As yet, there is no cure for scleroderma, only treatments and medications to help manage the symptoms of the disease. Some people who have mild scleroderma may find that they no longer have flares and their condition is considered in remission.

According to the Scleroderma Foundation, while there is no proven cure for scleroderma, much can be done to prevent, minimize or alleviate its effects and symptoms. 



If You Have Raynaud’s Phenomenon You Must Have Scleroderma As Well

It’s true that up to 90 percent of scleroderma patients will suffer from Raynaud’s phenomenon, which is a condition where the small blood vessels of the mouth, hands, feet and ears narrow and can make the skin turn blue when exposed to extreme temperatures. However, Raynaud’s phenomenon is a fairly common condition and only 3/4 of people who have Raynaud’s also have an autoimmune disease such as scleroderma.

Discover seven tips to help manage Raynaud’s phenomenon during the seasonal changes.

Scleroderma News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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One comment

  1. MarthaJean says:

    Thank you for this information. Right now CREST is having complete control of not just me but my wonderful husband of 53 blessed years. My children try to not talk about this. We have a wonderful young lady & her sweet family that has all but adopted us. I have a fantastic young & loving family next door, & our son close by. He is so good to both of us & our daughter visits as she can. I have blessings of a rheumatologist that listens as well as informs. We discuss meds, etc, & she is so helpful. My Wound Specialist & his team are compassionate to me. If I was meant to have CREST thank God I have so many loving caregivers in my life & know that all family physicians, nurse practitioners, & specialists aren’t “in it only for the money” when they see my happy face & Service Dog come through their doors. God Bless, mjl

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