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Recently, therapeutics targeting microRNA showed signs of success in mouse models of scleroderma. In this SclerodermaWA video, watch the interview with Dr. Mark Wener talking about what scleroderma is and what its treatment options are. Researchers at Paris Descartes University, France, recently…

Bob Saget is a well-recognized comedian, TV host, and actor. But what one might not know is that he is also an advocate for scleroderma. How and why did he become involved with scleroderma? In this …

According to the Scleroderma Foundation, while there is no proven cure for scleroderma, much can be done to prevent, minimize or alleviate its effects and symptoms.  In this Scleroderma Foundation video and for the opening keynote of the 2012 edition of…

  According to a recent study, Iloprost (Ventavis) in combination with Bosentan (Tracleer) might improve blood flow in the hands and feet of patients with systemic sclerosis. Find out more about this breakthrough study here. In this raynauds100 video, watch a patient talk about the struggles of living…

Raynaud’s syndrome occurs when the arteries which supply blood to the skin narrow and cut off the circulation to the fingers, toes, the tip of the nose, and tips of the ears. Discover how cold areas and stress can often lead to Raynaud’s syndrome with help from a licensed RN in this…

Scleroderma usually brings up other conditions and it is important that patients pay attention to those signs and learn how to manage them. According to the John Hopkins Scleroderma Center, scleroderma patients usually get carpal tunnel syndrome due to…

Throughout June, our resident blogger and scleroderma patient, Nicola Whitehill, posted daily information and facts on ‪scleroderma to celebrate the Scleroderma Awareness Month. Read all Nicola’s Scleroderma Awareness Month articles here. In this SclerodermaWA video, watch three people sharing their…

Raynaud’s phenomenon – a condition scleroderma patients often severely suffer from – happens when the arteries that supply blood to the skin narrow and cut off the circulation to the fingers, toes, tip of the nose, and tips of the ears. Learn more about Raynaud’s and how it affects…

According to the John Hopkins Scleroderma Center, there are some tips you can follow in order to manage your scleroderma fatigue.   1. Tiredness and fatigue might not be easy to notice Fatigue usually develops over time in scleroderma. In some cases, you might not even notice how tired you feel until someone else brings…

In this video from Brigham and Women’s Hospital, Marie Gerhard-Herman MD, Division of Cardiovascular Medicine, talks about Raynaud’s phenomenon, discussing diagnosis and treatment of the condition. Learn more about Raynaud’s and how it affects the body as told by a scleroderma patient. Raynaud’s phenomenon – a condition scleroderma patients often suffer from…