According to the National Institute of Arthritis and Musculoskeletal and Skin Diseases, here are some facts about Raynaud’s. 1. Raynaud’s causes the blood vessels to narrow in cold and stress situations, mostly in the fingers and toes. Learn more about Raynaud’s and how it affects the body as told by a scleroderma patient.
According to the John Hopkins Scleroderma Center, one of scleroderma’s early symptoms is Raynaud’s phenomenon. While not everyone with Raynaud’s will develop scleroderma, almost every scleroderma patient has Raynaud’s symptoms. Learn more about Raynaud’s and how it affects the body as told by a scleroderma patient. In this …
Throughout June, our resident blogger, Nicola Whitehill, decided to post daily information and facts about scleroderma every day for the duration of Scleroderma Awareness Month. See all her articles here. One of the topics she chose to write about was Raynaud’s, and according to the John…
A small study by researchers in Greece showed that B-cell depletion through “off-label” use of an approved drug may help to treat skin fibrosis in people with systemic sclerosis (SSc), and identified specific molecules of likely importance to this process. The article, “B cell depletion therapy upregulates Dkk-1 skin expression in patients…
In this amazing video, listen to Annie Elainey talk about invisible illnesses and how misleading it can all be. “You are here to find out what are those clues you should be looking for when trying to figure out if someone is disabled…
Scleroderma is an unknown disease to many, but according to the Scleroderma Foundation, an estimated 300,000 Americans have the condition. Here’s a list of ten myths about scleroderma debunked. 1. Scleroderma is the same for everyone. Scleroderma can differ greatly from one patient to…
Presented by Hrayr Attarian, MD, at the Scleroderma Patient Education Conference in 2014, learn more about Sleep in Chronic Illnesses with a Focus on Scleroderma. This presentation was hosted by the Scleroderma Foundation, Greater Chicago Chapter and the Northwestern Scleroderma Program. Learn more about scleroderma here:…
https://vimeo.com/158235473 Eight years ago, Jessica Massengale was diagnosed with scleroderma, an autoimmune disease that causes scaring in her skin and some internal organs. Since then, she has been raising awareness of this disease and helping others going through the same battle as her. In this New Pace video, here are some…
In this Amy Baker video, get to know Hollie’s scleroderma story told in her own word and those of her parents. “As parents, it’s devastating to know that your daughter might only live for a year or less. I don’t think any parent wants to outlive their child, so…
June is the start of Scleroderma Awareness Month, with the countdown to World Scleroderma Day, 29th June, fast approaching! In this David Sweet MP video, listen to his statement about scleroderma in the House of Commons on May 30th, 2016. “What is alarming is that…
Get regular updates to your inbox.