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Documenting the Reality of Living with Scleroderma

Throughout June, our resident blogger and scleroderma patient, Nicola Whitehill, posted daily information and facts on ‪scleroderma to celebrate the Scleroderma Awareness Month. Read all Nicola’s Scleroderma Awareness Month articles here. In this SclerodermaWA video, watch three people sharing their…

7 Tips to Manage Your Fatigue

According to the John Hopkins Scleroderma Center, there are some tips you can follow in order to manage your scleroderma fatigue.   1. Tiredness and fatigue might not be easy to notice Fatigue usually develops over time in scleroderma. In some cases, you might not even notice how tired you feel until someone else brings…

Raynauld’s Explained by a Doctor: Diagnosis and Treatment

In this video from Brigham and Women’s Hospital, Marie Gerhard-Herman MD, Division of Cardiovascular Medicine, talks about Raynaud’s phenomenon, discussing diagnosis and treatment of the condition. Learn more about Raynaud’s and how it affects the body as told by a scleroderma patient. Raynaud’s phenomenon – a condition scleroderma patients often suffer from…

7 Facts You Should Know About Raynaud’s

According to the National Institute of Arthritis and Musculoskeletal and Skin Diseases, here are some facts about Raynaud’s. 1. Raynaud’s causes the blood vessels to narrow in cold and stress situations, mostly in the fingers and toes. Learn more about Raynaud’s and how it affects the body as told by a scleroderma patient.

Raynaud’s Happening in Real Time

According to the John Hopkins Scleroderma Center, one of scleroderma’s early symptoms is Raynaud’s phenomenon. While not everyone with Raynaud’s will develop scleroderma, almost every scleroderma patient has Raynaud’s symptoms. Learn more about Raynaud’s and how it affects the body as told by a scleroderma patient. In this …

Raynaud’s in a Nutshell

Throughout June, our resident blogger, Nicola Whitehill, decided to post daily information and facts about ‪scleroderma every day for the duration of‪ Scleroderma Awareness Month‬. See all her articles here. One of the topics she chose to write about was Raynaud’s, and according to the John…

How to Spot a Fake Disability

In this amazing video, listen to Annie Elainey talk about invisible illnesses and how misleading it can all be. “You are here to find out what are those clues you should be looking for when trying to figure out if someone is disabled…

9 Myths About Scleroderma Debunked

Scleroderma is an unknown disease to many, but according to the Scleroderma Foundation, an estimated 300,000 Americans have the condition. Here’s a list of ten myths about scleroderma debunked. 1. Scleroderma is the same for everyone. Scleroderma can differ greatly from one patient to…