Author Archives: Patricia Silva PhD

Canadian Scleroderma, PH Groups Collect Over 2,000 Letters Urging Access to PAH Treatments

Scleroderma Canada and the Pulmonary Hypertension Association of Canada have collected more than 2,000 letters signed by pulmonary arterial hypertension (PAH) patients, their caregivers and loved ones urging politicians to make all PAH treatments accessible as soon as possible through public funding. Health Canada approved Actelion’s Uptravi (selexipag) in January…

8 Tips for Exercising When You Have Scleroderma

People with scleroderma realize they need exercise to keep their joints flexible. However, those living with the condition can often experience a lot of pain and the idea of exercising and risking making the pain worse is not an appealing one. MORE: Nine ways to motivate yourself to exercise When they do find the will and energy to exercise, it’s important they pace themselves. If they push themselves too hard on a day they’re active, they may not be…

The Benefits of Exercise for People With Scleroderma

It’s well-known among people living with scleroderma that regular exercise can help keep the joints flexible. This recommendation may be well-meaning but it may not apply to all who have the condition. It’s important that everyone works with their doctors and health care team to find their ideal fitness solution. MORE: …

9 Things You Should Know About Pain

Scleroderma is an autoimmune disease that causes a hardening of the skin. This can cause tightness around joints, which can be very painful. The American Physiotherapy Association has some important information to help patients deal with pain management. 1. Pain comes from the brain. We often think the source of pain comes…

5 Ways You Can Help Raise Awareness of Scleroderma

If you’re a patient, a family member or a friend who wants to do more to help someone suffering from a chronic illness, spreading awareness is one of the greatest gifts you can give. Awareness can mean big changes, including more money for more resources and research into more effective treatments and diagnostic tests. Awareness…