How to Create a Skin Care Routine with Scleroderma

Jessica Massengale avatar

by Jessica Massengale |

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The body has an organ that helps regulate body temperature, helps the brain feel different sensations, and measures about 20 square feet when stretched out. Our skin is the largest organ of our body, and one of the most important. It keeps harmful germs and microbes out and encloses our insides like a protective glove.

Many individuals with scleroderma have damaged skin from tightening, ulcers, and lack of circulation. It is important to treat our delicate skin with the utmost care, regardless of how it’s changed.

A new awareness is sweeping the nation about damaging chemicals, and consumers are becoming more conscientious of those that are in food, beauty, and household products. When dealing with autoimmune disease, it’s especially important to pay attention to chemical contents. The body is already fighting itself and harmful chemicals do not help the process. Be aware of what you put on your skin to help nourish and preserve it.

If skin has too much collagen (scleroderma causes this), the cells in charge of providing oil and lubrication to the skin have difficulty keeping it moist. The key to keeping skin moist is to create a protective barrier that lasts throughout the day. Doing so begins in the shower. Treat sensitive skin with fragrant-free lotion or soap. When searching for a new soap, make sure they are free of:

  • parabens
  • synthetic colors
  • phthalates
  • triclosan
  • sodium lauryl ether sulfate
  • formaldehyde
  • toluene
  • propylene glycol

According to HuffPost, these chemicals are linked to negative effects and should not go near sensitive skin. My tight, dry skin responded immediately when I first used an all-natural soap. My skin felt softer and cleaner and it didn’t feel like a film was left behind, as with other soaps. Coconut milk and shea butter are good soap bases that result in a rich, nourishing effect. Handmade, organic bar soaps are a natural alternative.

Markets often sell a convenient soap pouch to place bars in to get a good lathering effect. I use the soap pouch since my hands cannot hold a bar of soap. You can also use special showerheads to filter heavy metals and chemicals used to treat main water lines. Filtered water is thought to be less harmful and less drying of the skin.

Many lotions claim to provide hydration despite containing alcohol and other ingredients that do just the opposite. Some individuals with scleroderma use raw coconut oil or shea butter to moisturize. Itchy skin is a common symptom that can be somewhat relieved by taking care of the skin. CeraVe lotion has been a lifesaver, as it keeps the moisture locked in my skin all day and doesn’t leave behind a greasy film. Experimenting with unscented lotions created for people with sensitive skin is how I found the right one for me.

You must create a daily skin-care regimen to take care of your precious skin. Research is the best way to figure out the perfect concoction. Read labels, search for mostly natural cosmetics, and have your doctor advise about new creams or lotions. You are your biggest advocate and are in charge of doing what is best for you.


Note: Scleroderma News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Scleroderma News or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to scleroderma.


Theresa avatar


Can I use any anti-aging products if I have scleroderma?
It is localized in my hands, but I certainly don’t want to cause any further problems with facial products.
Thank you!

Nicci avatar


I was also wondering this and I’m 35 with schleraderma

Jeff Rhom avatar

Jeff Rhom

Can you take a shower everyday with systemic scleroderma

Devon D Branche avatar

Devon D Branche

Can I use goatmilk soap to cleanse my body? With natural herbs in it?

Melinda Carl avatar

Melinda Carl

I'm also looking for an anti ageing/ wrinkle cream. Is there anything safe to use?

Lisa avatar


Very informative! I really like the info provided by you about skincare.I will follow your advice. Thanks a lot for sharing.

Can I use collagen powder if I have a Scleroderma avatar

Can I use collagen powder if I have a Scleroderma

Can I use collagen powder if I have a Scleroderma
Also can I use dove soap with Shea butter for a Scleroderma skin

Angelo avatar


I was tested for the flu vaccine and was told I was allergic to it. I’m allergic to “ formaldehyde” that’s in the vaccine. I also have scleroderma and since the test I am unable to straighten my arm and extremely painful. The pain is from the elbow to the wrist.
Has anybody gone or knows anything about this condition.

Need help

Susan avatar


Please contact a Scleroderma Clinic...typically at a major teaching hospital and they specialize in scleroderma. University of Michigan has one, as well as JohnsHopkins Hospital (there are a few others as well). They will be able to give you advice.

Cheryl avatar


I have tried coconut oil and shea butter as a moisturizer; even making my own body butter using both. I find that they are too oily/greasy for me and just sit on my skin, especially my face. Just feels too heavy and my pores feel smothered. I will try the CreaVe lotion as it is non-0ily.


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