Living with a systemic, chronic, degenerative disease without a known cause or cure makes for a diary filled with medical appointments. Symptom management alone is a full-time job. I have a strict daily routine in place to minimize the severity of my ongoing symptoms. However, as every…
The body has an organ that helps regulate body temperature, helps the brain feel different sensations, and measures about 20 square feet when stretched out. Our skin is the largest organ of our body, and one of the most important. It keeps harmful germs and microbes out and…
When I became chronically unwell, the last thing I thought I would need was a social calendar. At the time of my diagnosis, I spent many hours resting due to relentless fatigue. I almost deleted the calendar application on my computer. It just didn’t seem feasible…
In a few weeks, the British Society for Rheumatology (BSR) will hold its annual conference. This year, Liverpool is the host city, which is not too far from me in Southport. Sadly, the practicalities of me actually being able to attend, even though the…
Some people go through life miraculously dodging any form of illness or disease. They go to the doctor for their physical once a year and don’t return until the next. Contrarily, a portion of the population spends so much time in a doctor’s office that it starts to…
As a chronically unwell parent, I am aware of the many complicating issues scleroderma has introduced into our family life. I have been especially worried about our son Jack, who was much younger than our two older (and just as wonderful) boys at the time of…
Spring has reluctantly arrived over here in the United Kingdom. An increase in the temperature is most welcome, even if it is only marginal due to my location. To make it out of winter without a body crisis by way of flare-ups or the like is, quite frankly,…
Since becoming chronically unwell five years ago with systemic scleroderma, I had to quit my job. As my husband and friends work during the week, I spend more and more time by myself. This means I have been forced into a situation that…
Aging is a beautiful journey that is viewed differently in every culture. Some cultures embrace the elderly and look up to them for knowledge and wisdom. Others may place their family in a nursing home because they don’t have the time to attend to them. An uncomfortable feeling lurks…
Being chronically unwell wears me down. I find that it is hard work to get through so many complications on most days. I am not referring only to pain and fatigue, but also to myriad other challenges including anxiety, boredom, and disappointment.
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