In a few weeks, the British Society for Rheumatology (BSR) will hold its annual conference. This year, Liverpool is the host city, which is not too far from me in Southport. Sadly, the practicalities of me actually being able to attend, even though the…
Some people go through life miraculously dodging any form of illness or disease. They go to the doctor for their physical once a year and don’t return until the next. Contrarily, a portion of the population spends so much time in a doctor’s office that it starts to…
As a chronically unwell parent, I am aware of the many complicating issues scleroderma has introduced into our family life. I have been especially worried about our son Jack, who was much younger than our two older (and just as wonderful) boys at the time of…
Spring has reluctantly arrived over here in the United Kingdom. An increase in the temperature is most welcome, even if it is only marginal due to my location. To make it out of winter without a body crisis by way of flare-ups or the like is, quite frankly,…
Since becoming chronically unwell five years ago with systemic scleroderma, I had to quit my job. As my husband and friends work during the week, I spend more and more time by myself. This means I have been forced into a situation that…
Aging is a beautiful journey that is viewed differently in every culture. Some cultures embrace the elderly and look up to them for knowledge and wisdom. Others may place their family in a nursing home because they don’t have the time to attend to them. An uncomfortable feeling lurks…
Being chronically unwell wears me down. I find that it is hard work to get through so many complications on most days. I am not referring only to pain and fatigue, but also to myriad other challenges including anxiety, boredom, and disappointment.
The very first step in the digestion process begins in the mouth. For someone with scleroderma, simply chewing food can be exhausting. Different disease factors affect one’s dental hygiene, but various steps can be taken to try to maintain a good environment within the oral cavity. Over 20 percent…
In an autoimmune disease, the body’s natural defense system, the immune system, malfunctions or “trips out,” resulting in the body attacking itself. The American Autoimmune Related Diseases Association lists over 100 different currently identified autoimmune diseases. With the rare…
I have recently become convinced that there is a specific event, kind of a “rite of passage,” that occurs for many chronically unwell people somewhere on their patient journey. I like to call it “The Great Transition.” It is the point when you realize…
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