Columns

Not so many years ago, around the time of my diagnosis, I recall having a major hissy fit. I had been invited to a wedding, and I didn’t like how I looked that day. My hair wasn’t right, and I just didn’t like the way my…

I think I have been stuck in some kind of time warp. Either that or I have been unconsciously under the illusion that I haven’t really changed over the past couple of decades. However, I have, of course. This realization was brought about recently…

We are now over halfway into our awareness month, culminating with World Scleroderma Day on June 29. As a long-term survivor of our rare disease, it has been very exciting for me to see the vibrant 2018 Scleroderma Awareness Month activity, which is taking place…

When I wrote my last column, I had no idea that my old dog Merlin was on the verge of dying. Despite having suffered from nasty arthritic hind legs for a while, he still had a good quality of life and was managing with pain…

We are nearly a week into June, our annual awareness month, which presents a spotlight opportunity for raising awareness about our rare disease and our day-to-day reality of living with scleroderma. The theme for this year’s Rare Disease Day — like last year’s — is research, so…

One of the many distressing aspects that scleroderma has brought to my life is my immune system’s inability to cope with any illness that comes my way. Part of the problem is that I take mycophenolate to help slow down the progress of my lung…

I feel strangely uncomfortable sharing my opinion in this particular column. I am conscious that there are many facets to the question of cannabis use, and differing opinions and ideas. There is much to say about its many benefits for the unwell and the questionable suppression…

The internet can seem like an endless portal that is easy to get lost in. Almost every topic, no matter how rare or obscure, has an article, blog, or website to follow. It can be tricky to determine which resources are trustworthy and which ones are…

June 1 marks the start of Scleroderma Awareness Month, with World Scleroderma Day falling on June 29. This is our opportunity to raise awareness of this rare disease in all of its guises. We can spend the month fundraising for research or raising…

I recently had lunch at the casino with a dear friend. We had planned it for some time, it was in my online diary, and I was really pleased to wake up on the day feeling well enough to go. Lunch was delicious,…