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Yoga Breathing for Symptom Management in Scleroderma

Gentle exercise can be beneficial to scleroderma patients and yoga can be a perfect fit for because of its low intensity and slow-paced comfort. In this Scleroderma Foundation video, watch Sundar Balasubramanian, Ph.D talk about basics of Yogic Breathing both in theory and practice…

Looking After Your Skin With Scleroderma

Vivian Stephens is a make-up artist who was diagnosed with scleroderma in her teenage years. In this video, she shares some of her tips on how to look after dry skin if you also have the condition. Discover more tips on how to look after your scleroderma-affected…

Scleroderma Journeys

In this Scleroderma Society of Canada film, we meet several scleroderma patients and rheumatologist Dr. Malette. Dr. Burt talks about hematopoietic stem cell transplantation (HSCT) and results of recent clinical trials. Find out more. The patients talk about when they were diagnosed, the symptoms they are experiencing and the…

Fibrosis: The Ugly Side of Collagen

“The skin is the largest organ in the body and is affected in most scleroderma patients. The exception to this rule is the limited subset version of scleroderma patients.” In this Scleroderma Foundation video, wacth Carol A. Feghali-Bostwick, Ph.D., talk about features of abnormal…

9 Superfoods That Might Improve Your Health

With winter just around the corner, it’s time we all started to look after ourselves a little bit more. Here are nine foods well-known for helping our bodies, based on information from prevention.com. But keep in mind, this is just a guide and each autoimmune patient has individual needs.

Patient to Patient Experience Symposium 2016

The Terranea Resort in Los Angeles, California is playing host to the unique Patient to Patient Experience Symposium. The three-day event will focus on the issues scleroderma patients face, including practical solutions to improve quality of life, promote positive health habits, and ways to prevent symptoms from getting worse. There…

Practical Tips for Managing Scleroderma Fatigue

In this Scleroderma Foundation video, Janet L. Poole, PhD, OTR/L from the University of New Mexico talks us through some sensible tips to help scleroderma patients manage their fatigue at the 2016 Scleroderma National Patient Education Conference in New Orleans. Read our columnist Nicola Whitehill’s take on scleroderma…

Mobile-Friendly: 8 Scleroderma-Related Conditions

According to the Scleroderma Foundation, here are some scleroderma-related conditions to be aware of: 1. Gastrointestinal issues People with systemic scleroderma may experience some digestive system and gastrointestinal tract irregularities that range from the mouth to the anal canal. Thickening and fibrosis (or scarring) of the tissues may happen because…

7 Tips to Better Manage Raynaud’s During Seasonal Changes

This month is Raynaud’s Awareness Month, and in this special article, our resident blogger and scleroderma patient, Nicola Whitehill shares her tips on how to better manage Raynaud’s during this seasonal change. Join her in “Show Your Colours For Raynauds Awareness.” 1. Don’t forget to take your medication It’s…