Scleroderma is a systemic autoimmune disease that causes hardening of the skin and connective tissues. The disease mostly affects women ages 30-50, but children and men can also be affected. Each patient’s experience with scleroderma is individualized. Some patients deal with slight skin tightening while other suffer from a variety of life-threatening internal…
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10 Scleroderma FAQs
If you have been newly diagnosed with scleroderma or have a loved one or friend who has the disease, there may be many questions going through your mind. We’ve come up with a list of some of the most frequently asked questions about scleroderma according to the Scleroderma Research…
Welmedix HomeCarePro produced a video series with expert tips about how to care for skin affected by scleroderma. In these videos, Paula Erwin-Toth, former director of WOC Nursing Education at Cleveland Clinic, teaches about how to take care of your skin, how to manage neuropathy and the impact on…
Yoga Poses for Scleroderma
Gentle exercise can be beneficial to scleroderma patients — which makes yoga’s low intensity, slow-paced comfort a practically perfect solution. Learn more about a study on the effects of aerobic exercise on muscle endurance training for patients with scleroderma. With this video from Yoga Center Reno, viewers can learn…
13 Scleroderma Foundation Resources to Help You
 1. Scleroderma Voice Magazine Members of the Scleroderma Foundation benefit from a free subscription to the Scleroderma Voice Magazine. This publication is issued four times a year and showcases patients stories, scleroderma research information, and much more. 2. Scleroderma Information Packet A free comprehensive packet of information…
Scleroderma Quote: Jason Alexander
Jason Alexander on Scleroderma Jason Alexander doesn’t have scleroderma but his sister did. After watching his beloved sister Karen Greenspan’s struggle with the debilitating disease, Alexander became a scleroderma advocate. Karen passed away in 2014. In this scleroderma quote, Jason Alexander reveals the progression of her disease. …
10 Important Symptoms of Scleroderma
Here are 10 symptoms of scleroderma and what they mean, according to the Scleroderma Foundation. 1. Acid reflux Acid reflux refers to stomach acid that returns back into the digestive track and ends up irritating the esophagus. It can be distressing and can cause other problems.
A recent study has found that people with medical conditions that cause abnormal changes in the hands, neck and face, such as scleroderma, are more likely to avoid social situations. Happily married women with scleroderma are less likely to suffer from depression than single women…
7 Tips for Living with Scleroderma
There are some simple steps you can take to help maintain your general health according to the Scleroderma Research Foundation. 1. Avoid smoking. Throughout June, our resident blogger and scleroderma patient Nicola Whitehill posted daily information and facts on scleroderma to mark Scleroderma Awareness Month.
Systemic Sclerosis: Conditions Overlap
Scleroderma is a systemic autoimmune disease which causes hardening of the skin and connective tissues. The disease mostly affects women ages 30-50, but children and men can also be affected. Each person’s experience of scleroderma is very individual to them, with some who deal with slight skin tightening to others who…
Recent Posts
- No-touch light test may help in monitoring scleroderma skin changes
- Ultrasound technique may help detect muscle changes earlier in SSc
- Study ties acid reflux, bloating to fatigue in scleroderma
- Study links cancer in scleroderma to timing and autoantibodies
- Routine blood test may help flag lung disease risk in diffuse SSc, study says
- Nearly half with SSc consider facial cosmetic therapy, survey finds
- Inhaled therapy for Raynaud’s attacks put on FDA fast track
- Vitamin B3 may improve blood vessels in scleroderma-related Raynaud’s
- John Stamos to be honored for longtime support of scleroderma research
- Study maps shift in prescribing patterns as guidelines evolve