Scleroderma is a systemic disease which can affect the entire body. This includes body organs, muscles, nerves, glands…. EVERYwhere! This makes for a very challenging time at tying to manage and control the symptoms, since there is no cure. The treatments available are symptom suppression agents at…
Scleroderma is systemic and can affect the entire body, depending on the type of scleroderma present in the body. This can be identified by specific blood screening and other diagnostic tests — see later on in the week for more information on this! The entire body is…
Each day, here at Scleroderma News, for the duration of Scleroderma Awareness month, I will be posting daily information and facts about Scleroderma, which I hope will be of interest. An empowered, educated patient makes for a better “scleroderma journey,” as prevention is better than cure, and there…
Wednesday is the start of Scleroderma Awareness Month, with the countdown to World Scleroderma Day, 29th June, fast approaching! To read my blog post about World Scleroderma Day, click here. Each day, here on Scleroderma News, I will be posting a different Scleroderma awareness…
The BSR held its annual conference recently in Glasgow. There were 3 sessions dedicated to Systemic sclerosis, scleroderma, over the duration of the 3day conference. Will Gregory, Ssc specialist physio, kindly shared his experience of day2 with Scleroderma News readers. To read the article, click here…
A Spotlight on the Ssc Scleroderma Symptom Hypopigmentation Sarah Jatto from Clapham, South London was diagnosed in 2009 with diffuse Ssc at age 19. Sarah has very kindly agreed to share her experience with the symptom of Hypopigmentation. ‘Hypopigmentation, also known as vitiligo, is something I…
DATE FOR YOUR DIARY: The webinar will take place on Wednesday, May 4th, 6:00pm London time, 7:00pm Madrid, 1:00pm New York City, 10:00am Los Angeles It gives me great pleasure to announce that Rareconnect have invited me to be a presenter at this forthcoming Webinar, along with Timo Söderlund, …
On Tuesday 26th through to the 28th of April, The British Society for Rheumatology held their annual conference, with this year’s venue being in Glasgow. Last year, it was held in Manchester, and I had the honour of being a presenter at one of the Ssc Scleroderma sessions. My presentation…
Spotlight on the Ssc Patient and HSCT: Katrina Brown ‘My name is Katrina and I served in the British Army 1999-2004 as a Combat Medical Technician. Feeling ill with a variety of symptoms including increasingly severe Raynaud’s, it wasn’t until April 2008 that I was diagnosed…
JOURNAL OF SCLERODERMA AND RELATED DISORDERS (JSRD) Volume 1 The official journal of THE WORLD SCLERODERMA FOUNDATION and THE EUROPEAN SCLERODERMA TRIALS AND RESEARCH GROUP (EUSTAR) ‘INTRODUCING THE JOURNAL OF SCLERODERMA and RELATED DISORDERS, a challenge for the future of our community’ This is the Editorial…
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