Columns

DAY 7  Scleroderma Awareness Month Raynaud’s can be an initial symptom in the autoimmune patient (MS, Lupus, Fibromyalgia) and, which of course, includes scleroderma. It is important to emphasize that Raynaud’s can also present on its own, without any autoimmune involvement. The current understanding is that if a…

DAY 6  Scleroderma Awareness Month Over the decades, more has gradually become known and understood about scleroderma and the symptoms which it presents. Today’s post is a copy of the current guidelines which are accepted globally, when reaching a systemic sclerosis, scleroderma diagnosis. Due to the multi complex…

DAY 5  Scleroderma Awareness Month DIAGNOSTIC TESTS Early diagnosis is crucial to prevent life threatening damage to the scleroderma patient. For, if the disease has progressed to a level causing irreversible damage, even a stem cell transplant or organ transplant (for the most severely affected patients), may not…

  The symptoms of Scleroderma can differ from patient to patient, with no two patients displaying the exact same set of symptoms. This makes diagnosis and treatment more challenging to meet the needs of the individual patient. In all types of scleroderma (see Day 1 of…

  Scleroderma is a systemic disease which can affect the entire body. This includes body organs, muscles, nerves, glands…. EVERYwhere! This makes for a very challenging time at tying to manage and control the symptoms, since there is no cure. The treatments available are symptom suppression agents at…

  Scleroderma is systemic and can affect the entire body, depending on the type of scleroderma present in the body. This can be identified by specific blood screening and other diagnostic tests — see later on in the week for more information on this! The entire body is…

Each day, here at Scleroderma News, for the duration of Scleroderma Awareness month, I will be posting daily information and facts about Scleroderma, which I hope will be of interest. An empowered, educated patient makes for a better “scleroderma journey,” as prevention is better than cure, and there…

  Wednesday is the start of Scleroderma Awareness Month, with the countdown to World Scleroderma Day, 29th June, fast approaching! To read my blog post about World Scleroderma Day, click here. Each day, here on Scleroderma News, I will be posting a different Scleroderma awareness…

The BSR held its annual conference recently in Glasgow. There were 3 sessions dedicated to Systemic sclerosis, scleroderma, over the duration of the 3day conference. Will Gregory, Ssc specialist physio, kindly shared his experience of day2 with Scleroderma News readers. To read the article, click here…

A Spotlight on the Ssc Scleroderma Symptom Hypopigmentation Sarah Jatto from Clapham, South London was diagnosed in 2009 with diffuse Ssc at age 19. Sarah has very kindly agreed to share her experience with the symptom of Hypopigmentation. ‘Hypopigmentation, also known as vitiligo, is something I…