Columns

Day 2 SCLERODERMA Awareness Month

  Scleroderma is systemic and can affect the entire body, depending on the type of scleroderma present in the body. This can be identified by specific blood screening and other diagnostic tests — see later on in the week for more information on this! The entire body is…

Day 1 SCLERODERMA Awareness Month

Each day, here at Scleroderma News, for the duration of Scleroderma Awareness month, I will be posting daily information and facts about Scleroderma, which I hope will be of interest. An empowered, educated patient makes for a better “scleroderma journey,” as prevention is better than cure, and there…

Hypopigmentation in Scleroderma: Appearance Change

A Spotlight on the Ssc Scleroderma Symptom Hypopigmentation Sarah Jatto from Clapham, South London was diagnosed in 2009 with diffuse Ssc at age 19. Sarah has very kindly agreed to share her experience with the symptom of Hypopigmentation. ‘Hypopigmentation, also known as vitiligo, is something I…

Journal of Scleroderma and Related Disorders Publishes First Volume

JOURNAL OF SCLERODERMA AND RELATED DISORDERS (JSRD) Volume 1 The official journal of THE WORLD SCLERODERMA FOUNDATION and THE EUROPEAN SCLERODERMA TRIALS AND RESEARCH GROUP (EUSTAR) ‘INTRODUCING THE JOURNAL OF SCLERODERMA and RELATED DISORDERS, a challenge for the future of our community’ This is the Editorial…

Mobility: An Ssc Patient Perspective

In September 1997, I was diagnosed with diffuse Systemic Sclerosis (scleroderma) and told by my medical consultant at that time that I would have to use a wheelchair by Christmas. Nine months later, I changed my medical consultant to the super-human beings who are Prof. Dame…