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Life with scleroderma can be a struggle. Sometimes, when the pain seeps into my bones and fatigue keeps me in bed for hours, the battle seems insurmountable. But even on those difficult days, I’ve learned to fake it until I make it. I can’t tell you how many times…

I’m a lot of work, even on a good day. Living with scleroderma requires me to spend a lot of time and energy on maintaining my health. Because of this, I often wonder if a potential life partner would think I am worth the emotional and physical effort a…

I sat on the shower floor in complete exhaustion, a scrubbing brush in one hand and a natural disinfectant in the other. Physically, I was at my breaking point. But the shower was only half-done. It’s tough throwing in the towel, but my body sometimes just doesn’t cooperate long enough…

“Wow, you were just discharged from the hospital? You look healthy to me.” I can’t remember a time when words have hurt me more. According to the U.S. Centers for Disease Control and Prevention, more than 53% of Americans are living with a chronic medical condition. As startling as…

Humans have known war almost since humans existed. Thousands of civilizations and religious evangelists have started wars to conquer their opponents and live to tell the tales. The difficult journey of living with scleroderma resembles preparing for and engaging in war. We build our bodies and minds to face…

All I wanted was to grab a plate of leftovers. Instead, I got an emotional beat-down from a bowl of freshly cut pineapples. The sight of pineapples always zaps me right back to intensive care, where I was recovering after having six strokes. I couldn’t have visitors due to the…

As 2022 comes to an end, I’m reflecting on the year and trying to look forward to all 2023 might offer. Many adults are probably excited to ring in the new year in style by going out on the town or enjoying a few drinks with friends. Sometimes I envy…

Scleroderma knows how to be a Debbie Downer. I can be enjoying a moment and BAM! Some debilitating pain or body malfunction pops up to ruin it. I can’t control when I’ll need to hit the pause button on our fun, but I can control how I approach the…

The holiday season is often a happy time. Giving gifts, spending time with family, and celebrating with food and conversation bring joy to many people. But for me, the holidays bring longing and envy. Christmas has always been significant for my family. While we’ve always held parties on Christmas Eve,…

One of my favorite smells is that of homemade soup simmering on the stove. It’s like a warm blanket for all of the senses. I used to make it when someone was sick, but after my scleroderma diagnosis, I found it helpful to make a huge batch and freeze…