Columns

How Fighting Scleroderma Is Like Waging War — and Isn’t

Humans have known war almost since humans existed. Thousands of civilizations and religious evangelists have started wars to conquer their opponents and live to tell the tales. The difficult journey of living with scleroderma resembles preparing for and engaging in war. We build our bodies and minds to face…

My Take on How Empathy Wins Over Sympathy

Scleroderma knows how to be a Debbie Downer. I can be enjoying a moment and BAM! Some debilitating pain or body malfunction pops up to ruin it. I can’t control when I’ll need to hit the pause button on our fun, but I can control how I approach the…

How Scleroderma Affected My Attitude Toward the Holidays

The holiday season is often a happy time. Giving gifts, spending time with family, and celebrating with food and conversation bring joy to many people. But for me, the holidays bring longing and envy. Christmas has always been significant for my family. While we’ve always held parties on Christmas Eve,…

Changing My Perspective Gave Me My Life Back

There’s always a dark cloud following me around. It’s the reminder that scleroderma has my life clock ticking a little faster. Most of the healthy people I know don’t quite understand this internal struggle. I can’t even count how many times I’ve heard, “Nobody knows how long they have…

Learning to Say No Can Save the Holiday Season

All the bedroom doors were closed and everyone was tucked in under their warm comforters. Except for me. I had taken on the 2013 holiday season like it was another full-time job. Without enough daylight hours to squeeze it all in, I was working the graveyard shift and bleeding myself…

How I Afford Holiday Gifts While Living on a Fixed Income

It’s​ ​beginning​ ​to​ ​look​ ​an​ ​awful lot like the holidays!​ ​Everywhere​ ​I​ ​go​ ​I​ ​see ​festive decor and signs for holiday sales.​ ​I ​guess​ ​I​ ​shouldn’t​ ​be​ ​surprised​ ​to hear​ ​”Jingle​ ​Bells” ​and​ ​”White​ ​Christmas” ​on​ ​the​ ​radio​ ​in November.​ ​The​ ​hustle​ ​and​ ​bustle​ ​of​ ​the season​​ ​often bring​s​ ​long​…