Columns

December 5, 2018December 19, 2018

‘Celebrating’ 20 Years of Being a Patient at the Scleroderma Unit

This week, I am celebrating my 20th year since first dragging my “tin-man” body to the Scleroderma Unit at the Royal Free Hospital in London. The previous year, at ... Read more

December 4, 2018December 3, 2018

I’m Getting Real About Scleroderma

Columns, Scleroderma and the Ordinary Girl

I’m horrified to discover that I’ve been keeping a secret from myself, locked away in my subconscious. It has to do with my scleroderma and what I appear to ... Read more

November 27, 2018November 26, 2018

My Routines Help Me to Feel in Control Despite ‘Random’ Scleroderma

Columns, Scleroderma and the Ordinary Girl

Scleroderma is a pretty “random” disease. I think the word “random” sums it up nicely for me at the moment. Currently, my symptoms are haphazard, ranging from heart palpitations ... Read more

November 21, 2018November 19, 2018

A Look Back at My Scleroderma Treatments Over the Years

Columns, Living The Dream

At the start of December, I will be celebrating my 20th year since first dragging my “tin-man” body to the Scleroderma Unit at the Royal Free Hospital in London. ... Read more

November 20, 2018November 16, 2018

This Little Light of Mine

Columns, Scleroderma and the Ordinary Girl

At times, I can become really despondent when I see the changes that scleroderma has caused to my physical appearance. One of those times happened last weekend when I was trying ... Read more

November 13, 2018November 12, 2018

There’s a Hole in My Bucket

Columns, Scleroderma and the Ordinary Girl

Systemic scleroderma has taught me many things; some useful and interesting, and others relating to the more difficult side of life. When the disease hit me, it was like ... Read more

November 7, 2018November 6, 2018

Skin Cancer and Other Skin Complications for People with Scleroderma

Columns, Living The Dream

The skin is the largest organ in the body and is affected in most scleroderma patients. At the time of my diffuse scleroderma diagnosis in 1997, I had extremely ... Read more

November 6, 2018November 5, 2018

My Scleroderma Sunflower Therapy

Columns, Scleroderma and the Ordinary Girl

Over the past week, I have been an angry little person. I contracted my husband’s head cold, and my immune system hasn’t coped well at all. Three weeks later, ... Read more

October 30, 2018October 29, 2018

It’s a Simple Life with Scleroderma and Me

Columns, Scleroderma and the Ordinary Girl

Life certainly is complicated, isn’t it? Over countless cups of tea with friends, I get to hear all about tricky mega-deals tangling big corporations, complex staffing issues, and legal wrangles ... Read more

October 24, 2018October 23, 2018

Looking Back on This Year’s Invisible Disabilities Week

Columns, Living The Dream

Invisible Disabilities Week took place from Oct. 14-20. The Invisible Disabilities Association explains how those with invisible disabilities can be misunderstood: “People often ask us to define invisible disability. ... Read more

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