Columns

July 18, 2018July 16, 2018

Happy 70th Birthday to the NHS: Thank You for Keeping Me Alive

Columns, Living The Dream

On July 5, 2018, over here in the United Kingdom, the National Health Service (NHS) celebrated its 70th year since its set-up by then-Health Secretary Aneurin “Nye” Bevan. According to ... Read more

July 17, 2018July 16, 2018

Coping with My Scleroderma Soul Fatigue

Columns, Scleroderma and the Ordinary Girl

Not so many years ago, around the time of my diagnosis, I recall having a major hissy fit. I had been invited to a wedding, and I didn’t like ... Read more

July 3, 2018June 29, 2018

Finding Consistency in the Face of Scleroderma

Columns, Scleroderma and the Ordinary Girl

I think I have been stuck in some kind of time warp. Either that or I have been unconsciously under the illusion that I haven’t really changed over the ... Read more

June 20, 2018June 18, 2018

Scleroderma Awareness Raising 2018: Medical Research Investment

Columns, Living The Dream

We are now over halfway into our awareness month, culminating with World Scleroderma Day on June 29. As a long-term survivor of our rare disease, it has been very ... Read more

June 19, 2018June 18, 2018

Grief, Scleroderma, and the Importance of a Holistic Approach

Columns, Scleroderma and the Ordinary Girl

When I wrote my last column, I had no idea that my old dog Merlin was on the verge of dying. Despite having suffered from nasty arthritic hind legs ... Read more

June 6, 2018June 4, 2018

Scleroderma Awareness Month 2018: Unmet Clinical Needs

Columns, Living The Dream

We are nearly a week into June, our annual awareness month, which presents a spotlight opportunity for raising awareness about our rare disease and our day-to-day reality of living ... Read more

June 5, 2018June 1, 2018

My Old Dog Teaches Me a New Trick

Columns, Scleroderma and the Ordinary Girl

One of the many distressing aspects that scleroderma has brought to my life is my immune system’s inability to cope with any illness that comes my way. Part of ... Read more

May 29, 2018May 24, 2018

Scleroderma and Medical Cannabis for the Chronically Unwell

Columns, Scleroderma and the Ordinary Girl

I feel strangely uncomfortable sharing my opinion in this particular column. I am conscious that there are many facets to the question of cannabis use, and differing opinions and ... Read more

May 24, 2018May 24, 2018

8 Useful Scleroderma Sites for Patients to Bookmark

Columns, Through Teal Colored Glasses - a Column by Jessica Massengale

The internet can seem like an endless portal that is easy to get lost in. Almost every topic, no matter how rare or obscure, has an article, blog, or ... Read more

May 23, 2018May 22, 2018

Scleroderma Awareness Month: Shining a Spotlight on Our Disease This June

Columns, Living The Dream

June 1 marks the start of Scleroderma Awareness Month, with World Scleroderma Day falling on June 29. This is our opportunity to raise awareness of this rare disease in ... Read more