Columns

Exercising with Scleroderma My Way

The medical police, aka my cardiologist team, have advised me to do no more than very gentle walks. I am not permitted to do anything more intense because we are waiting for cardiology test results. No weight training, no cycling, no strenuous kickboxing sessions.

Staying One Step Ahead of Scleroderma

Sometimes when I’m sitting in my recliner thinking about the meaning of life, I find myself fantasizing about how my funeral will go.  In my mind’s eye, it’s going to be a great party, with vases of sunflowers everywhere, plenty of my special…

Welcoming Kindness Creates Space for Healing

I had to travel to another part of the country last week. The outing was unplanned, but I’m never one to turn down a road trip if the opportunity arises. I packed my car with my medications, and accompanied by pleas from my husband to drive…

I’m Bursting the Scleroderma Boredom Bubble

The chronically unwell face plenty of daily challenges, some big and some small. But my latest battle was brought to my attention by binge-watching a TV series. I am a huge “Grace and Frankie” fan and have suddenly found my life much more interesting…

Celebrating the Bravery of All Scleroderma Warriors

It’s the middle of summer here in New Zealand. Today the temperature reached 91 degrees Fahrenheit — we Kiwis consider that pretty hot for Down Under.   During the summer months, Christchurch puts on many outdoor events, and Max and I decided it would…

A New Year and New Challenges

I survived the holidays! As fellow patients living with chronic, degenerative, rare diseases know all too well, there is no holiday from our daily myriad symptoms. The holidays can be isolating and difficult, as sometimes I am physically unable to join festivities. I am hypervigilant about…

Graduations, Elephants, and Christmas Blessings

Last weekend was our son’s graduation in Dunedin, a city in southern New Zealand that is home to Otago University. We were extremely proud to be there to watch him receive his degree in physical education. Traveling to Dunedin involved a five-hour car…