Therapeutic plasma exchange (TPE) is a novel method for patients with scleroderma that may revolutionize the treatment of the disease and is considered a new hope for patients. The technique was recently presented at the American Society for Apheresis (ASFA) 2016 Annual Meeting in a presentation titled “Therapeutic Plasma Exchange…
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Ann and Ray’s Scleroderma Journey
You might remember Ann Havelock’s amazing story and fight with scleroderma that Rick Dancer captured. Now, in his new video, we are able to see how is Ann now, and also learn more about how her husband has been supporting her through it all.
Systemic Sclerosis 101 by Mark Larche
In this McMaster University’s Faculty of Health Sciences video, learn more about systemic sclerosis, its features and the roles of various treatments from Dr. Mark Larché, “professor, Department of Medicine Canada Research Chair in Allergy and Immune Tolerance, GlaxoSmithKline Chair in Lung Immunology at St. Joseph’s…
What is an Autoimmune Disease?
In this Demystifying Medicine video from McMaster University, learn more about what an autoimmune disease is. “Autoimmune diseases causes your immune system to attack healthy tissue and cells instead of harmful substances.” Learn more about scleroderma here: https://bit.ly/learnscleroderma Scleroderma News is strictly a news and information…
Stepping Out to Cure Scleroderma: Heartland Chapter
In this KMTV Action 3 News video, get to know more about what scleroderma is and learn about the Heartland Chapter of the Scleroderma Foundation’s annual Stepping Out to Cure Scleroderma. The “Nebraska Stepping Out Walk and Family Day” will be held June 5th…
Medical Marijuana: Harmful or Helpful?
In a recent news, we reported that a research team has developed a cannabinoid-based drug that stimulates not only one, but two, receptors believed to be involved in fibrosis development in scleroderma. The drug, VCE-004.8, prevented the formation of fibrosis-promoting myofibroblasts in culture and stopped fibrotic changes…
In this Informing Families Building Trust video, listen to four parents sharing their perspective of having a child with a non-visible disability and their wish to erase the stigma perpetuated by society and professionals. Learn more about scleroderma here:…
Systemic Sclerosis Presentation – Dr Maggie Larche
In this McMaster University’s Faculty of Health Sciences video, listen to Dr. Maggie Larché, associate professor, Department of Medicine and Chair, Hamilton Scleroderma Group, talk about scleroderma, from its features to the roles of various treatments. Later on in the video, learn more about scleroderma from a patient’s perspective on this multi-system disease. Learn…
According to the John Hopkins Scleroderma Center, scleroderma patients usually get carpal tunnel syndrome due to the buildup of scar tissue and the swelling from leaking blood vessels. This narrowing can cause numbness and pain. In this Demystifying Medicine video from McMaster University, learn more about the different…
Exploring Raynaud’s Phenomenon
In this Demystifying Medicine video from McMaster University, learn more about Raynaud’s phenomenon, its symptoms, risk factors, and a potential mechanism behind how the disease works. Learn more about scleroderma here: https://bit.ly/learnscleroderma Scleroderma News is strictly a news and information website about the disease.
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