How many times have you asked yourself, “Is this scleroderma?” Odd sensations, abnormal changes, pain, and even visible deformities — there’s no shortage of strange symptoms with this disease. I used to embark on a fruitless journey to discover answers, spending hours researching and probing fellow patients in support…
Last year, I celebrated the 21st anniversary of my initial diagnosis of systemic scleroderma. Well, it wasn’t really a celebration, and I didn’t have a party with balloons and confetti. It was more of a moment of mourning for the life I had lived before my scleroderma diagnosis, followed by…
The scleroderma fog has struck again! My entire brain is floating inside a haze, and nothing is clear. I’ve been sitting in front of my computer for hours, writing and rewriting this column. I now have four different columns started, but as I write this, none are close to finished.
Being diagnosed with scleroderma can be overwhelming. It’ll take time to come to terms with the diagnosis and you’ll likely experience a range of emotions until then. MORE: Four of the most important questions about scleroderma However, there are ways to get your emotions under control. Firstly, it’s important to give yourself enough time to…
Fatigue is a well known, chronic, debilitating and severe symptom to the autoimmune disease patient, and especially so with scleroderma. I blogged about fatigue in April, to read the article click here. Managing this symptom can be extremely challenging. Living with constant exhaustion and lethargy, severely…
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