Project Scleroderma: Hollie’s Story

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by Wendy Henderson |

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This Project Scleroderma video posted on their Facebook page is all about 20-year-old Hollie from London, U.K.

MORE: Scleroderma patient appeals for help for a complicated lung transplant. 

Hollie first noticed something was wrong in her mid-teens when she began to experience joint pain in her hands. After visiting the doctor she was diagnosed with Raynaud’s phenomenon.

However, the pains in her hands continued to get worse and her fingers began to curl inwards. Dreams of being a hairdresser came to an end because Hollie could no longer hold a pair of scissors. At 17 years old, she was diagnosed with systemic scleroderma and just two years later doctors told Hollie that she may only live another year due to heart failure brought on by the disease unless she had a heart transplant.

MORE: Twelve things to care for when you have scleroderma.

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