Social Clips

A healthy diet does not cure scleroderma, but good nutrition is essential for patients’ overall health. In these presentations from FESCA at the Patient Congress at the 4th Systemic Sclerosis World Congress, Lisbon 2016, listen to Prof. A. Tyndall on “Changing Faces and Self-Esteem”, M. Sauvé on “Readjusting…

Back in February, researchers presented a study investigating the therapeutic effect of the monoclonal antibody CM-101 in animal models of systemic sclerosis (SSc) and idiopathic pulmonary fibrosis (IPF). Many readers of Scleroderma News have reached out and urged us to do more to…

Back in February, researchers presented a study investigating the therapeutic effect of the monoclonal antibody CM-101 in animal models of systemic sclerosis (SSc) and idiopathic pulmonary fibrosis (IPF). In this Demystifying Medicine from McMaster University video, learn more about diseases associated with scleroderma, specifically pulmonary diseases including fibrosis.

Recently a study identified by disease marker, the scleroderma patients best and least suited to take part in clinical trials. In this Oxford Academic (Oxford University Press) video, watch Professor Chris Denton talk about his article: ‘Twenty-two Points to Consider for Clinical Trials…

A healthy diet does not cure scleroderma, but nutrition is essential for patients’ overall health. In this Gifted Life video, learn some hospital hacks that might come in handy for a possible next admission (hopefully not ever). “To everyone who is currently in a hospital bed, I hope…

According to the Scleroderma Foundation, while there is no proven cure for scleroderma, much can be done to prevent, minimize or alleviate its effects and symptoms.  In this video from FESCA, taken at the patient congress at the 4th Systemic Sclerosis World Congress, Lisbon 2016, watch Dr. J. Lee talk…

Learn some fast facts about scleroderma, according to rheumatology.org: 1. Scleroderma is different from person to person and it can be very serious. Looking for more facts? Here are 20 Facts about Pediatric Scleroderma. 2. There are ways to alleviate the symptoms of Raynaud’s…

In this Demystifying Medicine from McMaster University video, learn more about a number of different drug therapies which are currently being used for scleroderma or for some of the symptoms associated with the disease. According to the Scleroderma Foundation, while there is no proven cure for scleroderma,…

In this Demystifying Medicine from McMaster University video, learn more about the causes of scleroderma. According to the Scleroderma Foundation, while there is no proven cure for scleroderma, much can be done to prevent, minimize or alleviate its effects and symptoms.  Since scleroderma is not caused…

https://www.youtube.com/watch?v=ATcwuizfouc In this video, watch Chanel White, “a mid-twenties, professional scleroderma patient by day, and an avid social media user by night” debate about one of the most recurring comments many patients hear: “But you don’t look sick!” According to the…