Author Archives: Patricia Silva PhD

World Scleroderma Day, June 29: Organizations to Hold Worldwide Flash Mob

Several North American advocacy and research non-profit organizations will host a virtual flash mob June 29, on World Scleroderma Day, to raise awareness for the disease. The social media event will happen on the heals of more than 100 fundraising walks, tributes and other events held during June’s Scleroderma Awareness Month. Organizations heading up…

Inspirational Stories: Scleroderma Strong

Eight years ago, Jessica Massengale was diagnosed with scleroderma, an autoimmune disease that causes scaring in her skin and some internal organs. She had been raised thinking she could do anything if she tried, and Jessica Massengale decided she would not suffer alone or in silence. Therefore, she created the project…

Video Series: Scleroderma and Nutrition

A healthy diet does not cure scleroderma, but nutrition is essential for patients’ overall health. It is important that patients who suffer from scleroderma discuss with their rheumatologists or nutritionists the best course of action. However, it is usually recommended that scleroderma patients follow a healthy and well-balanced diet,…

Oral Drug, Macitentan, Found Ineffective in Treating SSc-associated Digital Ulcers in Phase 3 Studies

Macitentan, an oral endothelin receptor antagonist, was found in two Phase 3 clinical trials to be an ineffective treatment of digital ulcers in patients with systemic sclerosis. Trial results were evaluated by Dinesh Khanna, MD, and colleagues from the University of Michigan Scleroderma Program in Ann Arbor. Their findings, detailed in the article “…