Life certainly is complicated, isn’t it? Over countless cups of tea with friends, I get to hear…
Kim Tocker
I’m 49 and live in Christchurch, New Zealand. I was diagnosed with Limited Systemic Scleroderma in 2013, and the disease has slowly progressed over the past three years. Prior to my diagnosis, I worked as a Counsellor/Therapist in private practice, however I was forced to close my practice in 2014 because the fatigue associated with the disease had become profound. Well before I studied, trained and worked as a Counsellor many years ago (at least 20) I was employed as a Dental Assistant. It is my belief that whilst working in this capacity I handled a number of chemicals that are now considered dangerous and this exposure may have been the trigger for my disease, together with an already existing genetic component. These days, my full time job is to work hard at my self-care and manage my symptoms as best I can. Part of this management is to reflect on and write about my experiences about living with Scleroderma in ordinary day to day life. This helps me a great deal, and I hope it helps my readers, both those who also suffer with Scleroderma, and to help raise awareness in those who do not. I enjoy adding a little humour to my writing, because honestly, I feel it’s important we all have a wee laugh from time to time. However, my writing usually includes a serious reflection of some sort. On a personal note, I am the wife of one, and the Mother of three boys. My husband Max is my main caregiver, and I am very fortunate to have such a loving and giving spouse. My children are aged 21, 19 and 13, and our two oldest boys live in different parts of New Zealand to study and work. Our youngest will be starting High School in 2017. We live with a menagerie of animals, including two dogs and four cats.
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Articles by Kim Tocker
Scleroderma Penetrates My Dreams
Since childhood, I have had a wonderful reoccurring dream in which I fly around a town…
I want to write about a strange little topic today that some may find uncomfortable to…
I notice that something happens whenever I feel unwell and overwhelmed by my disease and the…
My filtering system is wonky. Kidney issues are likely the first things that come…
“So, have they given you any indication about your prognosis regarding longevity?” I wasn’t…
Continual flare–ups have been a huge challenge for me over the past few months. It seems…
When It Is OK to Say, ‘I Can’t’
There is a phrase that gets me going every time it is offered up to me.
It was Wednesday again, the dreaded supermarket day. The weekly shopping trip is a big ask…
Not so many years ago, around the time of my diagnosis, I recall having a major…