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Chances are you know someone who has an invisible illness. An invisible illness means that a person is suffering from an illness or disease which isn’t necessarily visible on the outside. However, just because you can’t see what’s wrong doesn’t mean that there isn’t anything wrong. People with invisible illnesses…

With scleroderma, connective tissues in the body’s major organs become thickened due to an overproduction of collagen.  Scleroderma most noticeably affects the skin, but it can also affect internal organs leading to pulmonary arterial hypertension, and heart and GI tract diseases. Read about seven common complications of scleroderma here.  In…

Scleroderma (SSc) is a rare but progressive autoimmune disease that mainly affects women between the ages of 20 and 50, although men and children can also develop the disease. Many patients who have scleroderma also develop pulmonary arterial hypertension (PAH). 1. According to the Scleroderma Foundation, there are an estimated…

A healthy diet does not cure scleroderma, but nutrition is essential for patients’ overall health. In this video by Home Remedies, get some tips for making at-home remedies that might help with scleroderma. According to the Scleroderma…

Exercise and physical activity is important for people with scleroderma, specially when it comes deal with the fatigue that may come from the disease, but over the holidays it can be difficult to find the time. With this in mind, we’ve put together a list of tips to help you find…

At the beginning of the year, a team of researchers developed a potential therapy for patients with scleroderma: an anti-scarring paste to help prevent the progression of fibrosis. The study focused on radiation dermatitis, a type of fibrosis that develops in about 95 percent of patients undergoing radiation therapy. The intense beam…

This month is Raynaud’s Awareness Month, and in this special article, our resident blogger and scleroderma patient, Nicola Whitehill shares her tips on how to better manage Raynaud’s during this seasonal change. Join her in “Show Your Colours For Raynauds Awareness.” 1. Don’t forget to take your medication It’s…

It’s no surprise that sometimes people say things they don’t want to–or mean to. Especially when they’re talking to someone with a disease like scleroderma, that is not fully understood by those who don’t live with it. To help you learn more about what you shouldn’t say to chronically ill…

In this Scleroderma Foundation, Greater Chicago Chapter video, learn more about the photopheresis and how it can impact scleroderma from Jaehyuk Choi, assistant professor of the Department of Dermatology and director of the extracorporeal photopheresis unit at Northwestern University.  Learn more about about…

Scleroderma is a rare autoimmune condition whereby the body produces too much collagen, which presents widespread symptoms in different parts of the body. Learn more about the main areas of the body affected by scleroderma. In this Scleroderma Foundation video, Janet Poole, Ph.D. talks about…