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In this video from the Scleroderma Foundation, listen to everything you should know about how scleroderma affects the hands. In this session from the 2015 National Patient Education Conference by Dr. Francesco Boin, learn what’s causing damage and how to take good care of your hands. Learn…

In this video from the Scleroderma Foundation, watch “Understanding the Psychological Effects of Scleroderma” by Ginny Maril, M. Psy. People living with scleroderma know that its effects are not solely physical. This session will look at some of the obvious and not-so-obvious effects that living with scleroderma may have on…

Teresa Nadeau died in 2013 after a long and hard-fought battle with scleroderma. Nevertheless, she left us with her amazing story of strength, told in her own words. Watch the beginning of her story above and the following parts below. Learn more about the…

“Scleroderma VOICE” is published four times a year and features stories about people living with scleroderma. In addition, it also has updated research information, answers to your questions about scleroderma, and much more. See past issues online and learn more about the Scleroderma Foundation Magazine here: http://bit.ly/1N8RNBS Learn more about Scleroderma  here:…

https://www.youtube.com/watch?v=gL7xdfjqrhc “Christy McCaffrey started the ‘Beneath the Surface’ project after she lost her mother to Scleroderma.  In this video you see a sneak peek of her interview with Julie, a fellow scleroderma sufferer.”   Learn more about this project here: http://bit.ly/1SPNRHH Learn more about Scleroderma  here:…

This video was created by fourth-year McMaster University Students: Nabeelah Khan, Andrew Nguyen, Helen Kim, Tosin Tomiwa, Kosalan Akilan, and Justin Lu for McMaster’s Demystifying Medicine seminar series. Although Scleroderma associated symptoms can be severe, they can be largely reduced if scleroderma is detected in its early stages and properly…

According to the Scleroderma Foundation, Dr. Serebro’s Five Rules for Scleroderma Patients are: No tobacco or smoking. No drinking alcoholic beverages. No caffeine such as soda or coffee drinks. Stay active through exercise such as Aquacise. Stay warm and avoid going outside in temperatures below 60 F   The…

In this video from the Scleroderma Foundation, learn more about pulmonary arterial hypertension and scleroderma by Aryeh Fischer, M.D. Pulmonary arterial hypertension can be a serious complication of scleroderma. New therapies offer hope to those who have been diagnosed with PAH. In this session, participants will gain a clear understanding…

  Learn some fast facts about scleroderma, according to rheumatology.org: Scleroderma differs from person to person, but can be very serious. There are medications, as well as steps individuals can take, to ease the symptoms of Raynaud’s phenomenon, skin problems and heartburn. Effective treatments are available for those with…

Read the Articles Here: Breakthrough Therapy Designation Awarded to Roche for SSc Treatment Systemic Sclerosis Patients’ Intestinal Microbiome Found To Be Enriched by Inflammatory Bacteria “Debilitating, Profound” Fatigue Reported by Patients with Autoimmune Diseases Such as Scleroderma…