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Bob Saget is a television host, actor and comedian. He is also a very vocal advocate for scleroderma. Saget’s involvement with the scleroderma community began in 1989 when he met Sharon Monsky, the founder of the Scleroderma Research Foundation. Back then the foundation was in its infancy and Monsky asked…

It’s well-known among people living with scleroderma that regular exercise can help keep the joints flexible. This recommendation may be well-meaning but it may not apply to all who have the condition. It’s important that everyone works with their doctors and health care team to find their ideal fitness solution. MORE: …

Writer Amy Gietzen has lived with scleroderma for 16 years. Diagnosed with the condition at 19, she has seen her body go through many changes and has had to adjust to the hardships life has thrown her way due to the disease. MORE: Professional gardener explains how scleroderma and…

Being diagnosed with scleroderma can be devastating, and as the disease progresses your life is bound to change. However, this doesn’t mean that you have to let scleroderma take over — you can regain control and live a happy and productive life. According to hopkinsscleroderma.org, there are three main…

This video from The Mighty shares some of the things a person living with a chronic illness might want to carry around with them on a daily basis. MORE: Seven foods for eating well with a chronic lung condition The survival pack contains some of the essentials…

Scleroderma is an autoimmune disease that causes a hardening of the skin. This can cause tightness around joints, which can be very painful. The American Physiotherapy Association has some important information to help patients deal with pain management. 1. Pain comes from the brain. We often think the source of pain comes…

Scleroderma is an autoimmune disease that can affect any part of the body and internal organs, including the heart. In this video from the Scleroderma Foundation, Greater Chicago Chapter, learn how heart function can change in scleroderma patients. MORE: Six tips to help you take the…

This video from Scleroderma and Raynaud’s UK is about Sue Dryden, a professional landscape gardener who has worked at the prestigious Hampton Court Palace in Surrey, England, and the world-famous Chelsea Flower Show. MORE: Five tips for managing Raynaud’s Syndrome through the summer months Sue suffers…

If you’re a patient, a family member or a friend who wants to do more to help someone suffering from a chronic illness, spreading awareness is one of the greatest gifts you can give. Awareness can mean big changes, including more money for more resources and research into more effective treatments and diagnostic tests. Awareness…

We know dealing with scleroderma sometimes feels like an uphill battle, both for the patients and the caregivers. You feel like you’re not doing enough or as if the disease is taking up all your time and attention. To help you on your journey, we’ve gathered a few quotes we…