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The fatigue that accompanies scleroderma is not only an unwelcome, relentless symptom which is difficult to control and manage but can also quite often be overlooked, with the initial management of the disease focusing on the more important (quite rightly), life threatening skin and organ fibrosis progression. There are possibly a…

According to the Scleroderma Foundation, there are some common-sense tips that a scleroderma patient should pay attention in order to better his/her health and well-being. 1. Manage your fatigue In order to deflect fatigue, make sure to avoid major efforts and get plenty of rest. It is in your best interest…

Scleroderma 5K and Family Fun Day in the Valley, a Scleroderma Foundation of Southern California event, will happen May 15, 2016 at the Van Nuys Sherman Oaks War Memorial Park. Apart from the walk, it will have “Music, awesome raffles, food truck (for purchase), entertainment, awards and a kidzone with…

Wyatt Wright a.k.a (Wyatt The Warrior) is a 9-year-old young man who was diagnosed with localized scleroderma (linear) at the age of 8. Wyatt takes 6 ½ tablets a day and has a weekly chemo injection. He is also getting ready to have his second knee surgery in six months,…

In July 2014, Edward Harris launched a website called the Scleroderma Education Project, where he writes and publishes articles providing comprehensive, unbiased, and research-based information about scleroderma. His articles are crafted to the audiences’ varied concerns — including a March 8 post on organ involvement in the disease —…

Because the overwhelming majority of people with the skin condition scleroderma also have gastrointestinal (GI) problems, researchers in Ontario set out to review existing literature in their potential causes to help facilitate the treatment of GI symptoms in these patients. What they found, though, was too few scientific studies into GI risk factors to adequately draw…

In this video from Welmedix HomeCarePro, learn how to manage neuropathy with Paula Erwin-Toth, former Director of WOC Nursing Education at Cleveland Clinic. Learn more about scleroderma here: http://bit.ly/learnscleroderma More studies from Paula Erwin-Toth: https://www.researchgate.net/researcher/2038552953_Paula_Erwin-Toth…

According to the American College of Rhematology here are some scleroderma facts you should know about: Scleroderma is different from one patient to another. Scleroderma may not be visible to the naked eye. In the U.S., between 75,000 to 100,000 people have scleroderma This disease attacks mostly women between 30…

1 – 8 Scleroderma-Related Conditions You Should Look Out For Learn more about these eight scleroderma-related conditions you should look out for. Read full article: http://bit.ly/1UWD0yA   2 – Scleroderma Education Project, Delves into Organ Involvement in Recent Post In July 2014, Edward Harris launched a website called…

https://www.youtube.com/watch?v=5Oe38BUbj50 In this Welmedix HomeCarePro video learn more about how to manage incontinence with Paula Erwin-Toth, former Director of WOC Nursing Education at Cleveland Clinic. Learn more about scleroderma here: http://bit.ly/learnscleroderma More studies from Paula Erwin-Toth: https://www.researchgate.net/researcher/2038552953_Paula_Erwin-Toth Scleroderma News is strictly a news and information website about the disease.