According to the University of Michigan’s Department of Internal Medicine Patients, “Patients with limited scleroderma have the risk of developing progressive blood vessel narrowing in the lungs frequently in the absence of lung scarring and inflammation. This complication is called pulmonary arterial hypertension (PAH).” Learn more about…
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Did you know that although women have a greater risk of systemic sclerosis (SSc), they may actually experience a lesser degree of symptoms? But what difference does it make and how does this impact scleroderma patients? Researchers believe that the differences between male…
Pulmonary Arterial Hypertension in Scleroderma
In this video from the Scleroderma Foundation, learn more about pulmonary arterial hypertension and scleroderma by Aryeh Fischer, M.D. Learn more about an algorithm that helps detect pulmonary hypertension in systemic sclerosis patients. Pulmonary arterial hypertension can be a serious complication of scleroderma. Last year, a review study suggested that borderline…
Exercise and physical activity are important to deal with the fatigue that may come from scleroderma. Too little activity can make fatigue worse. In this Jason Dougherty’s video, learn more about a study on the effects of aerobic exercise on muscle endurance training for patients with scleroderma.
Treatment Options for Scleroderma
Recently, therapeutics targeting microRNA showed signs of success in mouse models of scleroderma. In this SclerodermaWA video, watch the interview with Dr. Mark Wener talking about what scleroderma is and what its treatment options are. Researchers at Paris Descartes University, France, recently…
Bob Saget and His Connection with Scleroderma
Bob Saget is a well-recognized comedian, TV host, and actor. But what one might not know is that he is also an advocate for scleroderma. How and why did he become involved with scleroderma? In this …
Living with a Chronic Illness
According to the Scleroderma Foundation, while there is no proven cure for scleroderma, much can be done to prevent, minimize or alleviate its effects and symptoms. In this Scleroderma Foundation video and for the opening keynote of the 2012 edition of…
Living and Managing Raynaud’s
According to a recent study, Iloprost (Ventavis) in combination with Bosentan (Tracleer) might improve blood flow in the hands and feet of patients with systemic sclerosis. Find out more about this breakthrough study here. In this raynauds100 video, watch a patient talk about the struggles of living…
Raynaud’s: Medical Conditions and Treatments
Raynaud’s syndrome occurs when the arteries which supply blood to the skin narrow and cut off the circulation to the fingers, toes, the tip of the nose, and tips of the ears. Discover how cold areas and stress can often lead to Raynaud’s syndrome with help from a licensed RN in this…
A Tingling Sensation: Carpal Tunnel Syndrome
Scleroderma usually brings up other conditions and it is important that patients pay attention to those signs and learn how to manage them. According to the John Hopkins Scleroderma Center, scleroderma patients usually get carpal tunnel syndrome due to…
Recent Posts
- Dexamethasone reduces inflammation, scarring in SSc mouse model: Study
- Survival improves for SSc-PAH patients on combination therapy
- Combination drug therapy boosts lung, skin health in SSc patients
- On choosing medicine’s side effects over scleroderma progression
- Telerehabilitation improves hand mobility in scleroderma women
- Molecular pathway ID’d as key driver of scarring in scleroderma
- Limited hand function disrupts daily life for people living with SSc
- Coping with loss is part of living with scleroderma
- CAR T-cell therapy eases SSc symptoms, early trial data show
- Milk-derived particles may offer treatment path for SSc fibrosis