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In this video from the Greater Chicago Chapter of the Scleroderma Foundation, we see a presentation from the Scleroderma Patient Education Conference held on October 15, 2016 in Chicago. MORE: 12 things to care for when you have scleroderma Dr. Shervin Assassi, MD, an associate professor at the McGovern…

Being diagnosed with scleroderma can be devastating, and as the disease progresses, your life is bound to change. However, this doesn’t mean that you have to let scleroderma take over — you can regain control and live a happy and productive life. According to hopkinsscleroderma.org, there are three main…

Pain, along with fatigue, is one of the main symptoms of scleroderma and one of the toughest to deal with on a day-to-day basis. While the areas of the body affected by pain will vary from one scleroderma patient to another, the pain is generally caused by one of these five issues, according to…

One of our resident columnists, Nicola Whitehill, took the opportunity during Scleroderma Awareness Month to profile some of the people who live with the disease from around the world. MORE: Find out how you can raise scleroderma awareness here Writing on her own personal blog Raynauds Scleroderma Awareness, Nicola shares a rare…

In this special article, Scleroderma News Today‘s resident blogger and scleroderma patient, Nicola Whitehill shares her tips on how to better manage Raynaud’s during a seasonal change. 1. Don’t forget to take your medication.  It’s important not to miss any dose of your medication. Try to organize your treatment plan…

With the holiday season in full swing, it’s the perfect opportunity to take a look back at 2017. It’s been a year full of ups and downs, and while there were definitely quite a few low moments, there were certainly quite a few highs. To celebrate the year that was,…

This video from FESCA taken at the fourth Systemic Sclerosis World Congress in Lisbon in 2016 shares two presentations dedicated to the progression of scleroderma and how it affects patients on a long-term basis. MORE: Six tips for eating well with scleroderma First up is Dr. Jason Lee whose…

Scleroderma is an autoimmune disease that causes a hardening of the skin. This can cause tightness around joints, which can be very painful. The American Physiotherapy Association has some important information to help patients deal with pain management. 1. Pain comes from the brain. We often think the source of pain comes…

Managing a chronic illness can be difficult. There are many different medications to take (often at different times), appointments to remember, symptoms to keep track of, and lots of information to absorb. Thankfully, living in a digital age means that there are numerous mobile apps that can help you manage…

Being diagnosed with scleroderma can be overwhelming. It’ll take time to come to terms with the diagnosis and you’ll likely experience a range of emotions until then. MORE: Four of the most important questions about scleroderma However, there are ways to get your emotions under control. Firstly, it’s important to give yourself enough time to…